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Update from.....Izzy

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Meh:
well as bad as it is to have any kind of health problem, I guess it's good to be able to define it now

Twoapenny:

--- Quote from: Skits on September 03, 2013, 10:26:55 PM ---Thank you Hops and lighter

-----and on it went, so today I went back to the hospital again. Something had to be done!!! and was again sent home with no answers. There was a nice doctor in Trauma Emergency. Tony.

I was barely home and on my computer when he called. He had an answer for me--Polymyalgic Rheumatica--and would telephone a Rx to Drug Store for me. I now have it and took my first. Will take 7 and report to my regular no Dr. Dr., next Monday.

All the symptoms etc. fit exactly.  ♥Tony♥ looked it up and called me right after I left. My first symptoms were in January, 2013

With the first symptoms, headache and eye aches, I went for my eye check. I was okay but Dr. Prescott said to go to my Dr. and be checked for Giant Cell Arteritis. It is an almost equivalent of Polymyalgic Rheumatica, yet the full set of symptoms hadn't erupted quite yet. My Dr. Dr. say I didn't have G.Cell A and sent me home with my tail between my legs. I wonder, if this works out to be PR, if he'll remember? As well "bone marrow failure" cannot be diagnosed without first taking some bone marrow and testing it---Damn! I should have caught that!

So 1 pill down and 6 to go!! The Mayo Clinic has a good write up, if you Google PR.

(All I have to do is tell someone something, and it turns into an exaggeration----in this case, I hope so for the first diagnosis and not for this new possibility.)

Love
Izzy

Thank you Dr. Grossman

I appreciate your kind words and good wishes. I really do!

Izzy

--- End quote ---

Hi Izzy, I'm really glad that they have found some answers for you and hope that these meds help.  Hope that you're feeling better soon xx

Hopalong:
Whew. I read this: http://www.mayoclinic.com/health/polymyalgia-rheumatica/DS00441/DSECTION=treatments-and-drugs.
It makes so much sense. You've been talking about your shoulder/s for a long time.

Jeez. I hate that you have a new source of pain.
I love that it sounds treatable.
I love that you have an ANSWER, because a diagnosis is a relief. (I hope.)
Many hopes that your docs whack it with all the right stuff and in the right timing
and that you feel relief very soon.

(Then we can go back to sticking you in closets and stuff, to manage the other
pain...)

Also a huge relief that you may not have a bone marrow problem.

WHEW!

Izzy, I have learned more about pain from reading your posts over the years
than from almost anyone I know. Your journey has been awful but also a deep
reminder of how much we take for granted when our lhysical lives are not as challenging
as yours has been.

I just met a writer who writes scholarly books about pain. I thought of you
when I read some of the summaries.

Makes sense to me that at VESMB, where we talk a lot about emotional pain,
one voice is here to show us how arduous it is to deal with the literal pain
of the body. Your pain is from accidents as well as early severe abuse...
and listening to you has taught me a lot that I can't articulate well.

I just know that it doesn't matter to me exactly how a person thinks,
if I'm in their vicinity and they're suffering pain...I wish I could relieve it.

love to you, and soooooooooooo glad for this update...keep them coming!

Hops

Izzy_*now*:
Thanks Green Bean, Twoapenny, Hops again and everyone---

So , no moustache, yet!

The best way to know about the diagnosis is the patient’s reaction to the medication.

Dead On!

One pill last night, no pain, up once for bathroom--no problem--- awoke at 9:00 a,m.

Could reach up to the cupboard for a clean plate (been using the same one for 9 months [[[[hahaha]]]]

Could take a year to be over it, but a relapse could happen in 10 years. Well I might be living on Mars in 10 years, too!

Love to all
Izzy ♥ ♥ ♥ !♥

lighter:
Izzy:

I'm relieved that this new doctor seems to be competent, and on point.

That's HUGE all by itself.

((((Izz)))))

Light

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