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What gives you your sense of self worth

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Twoapenny:
Another quick stop in, I will update properly soon but at the moment I'm getting the van ready for its MOT and there's so much to do, lol.  But anyway, farm idea is off as there's no electric there - off grid and no internet I can cope with but no electric at all, not so much.  But some people I know are talking about taking it on so might be possible to stay for a couple of weeks in the summer or something and do a working holiday.  So back to original plan of moving one month before Christmas, still exciting!  Will update soon, thank you very much for your thoughts on this one, funny how things pop up sometimes :)

lighter:
Eeek.... it actually made me a bit dizzy to read there's no electricity. 

At all.

:shock:

Good to take it off the table, IMO.

I look forward to your posts about the planned November move: )

Lighter

Twoapenny:
Lol, I know Lighter, there are many things I can cope with but no electric at all isn't one of them!  Will update soon, van has just spectacularly failed its MOT so we are without a vehicle at the moment and not too sure what's going to happen about that so things are a little bit up in the air :)

lighter:
Well.... I guess that's the yearly inspection, right?  The MOT?

Did it pass last year?

Lighter

Twoapenny:
Just a quick update as we've had a nightmarish week and my head is spinning.

We've had bad news about my son.  It is looking like he has quite a serious genetic disorder that, goodness only knows how, the endless slew of doctors we've seen over the last ten years have missed.  If he does have what they think he has then the outlook is not good.  He could become more and more disabled, physically and mentally, as the years go on.  They have more tests to do but the tests they have done so far are pointing in that direction so the outlook isn't great at the moment.

Apart from it obviously being a devastating possibility, it also throws all of our plans for colleges up in the air.  I had looked at colleges assuming his health would remain as it is or get better, not from a point of view of him possibly needing more and more care.  So our current choices may not be suitable, which means all plans for moving are on hold, again.  The thought of staying here another minute just feels to much to bear at the moment.  Since I've had that weird revelation at counselling that THEY LIVE ACROSS THE ROAD I have really struggled to cope.  Added to all of that our van failed the MOT quite spectacularly (Lighter, you are right, it's the yearly safety inspection so if it fails you can't drive it until the repairs have been done and it's been retested and signed off) so we are currently without transport either and I don't know when that will all be sorted out.

So - in head spinning mode at the moment - the further tests could take several more months to be completed and may or may not show what the doctors are currently thinking the problem is.  It's a lot of uncertainty and the stress of that alone is sending me through the roof.  Having to also put my escape plan on hold has crushed me; I've also had to cancel our holiday as the doctors want me to take my son straight to the hospital when he next has an episode and as there's no way of knowing when that will be I can't risk being hundreds of miles away if and when it happens.  So the things that were helping me to cope day to day are no longer in place.

At the moment the only thing I can think of is to go for a temporary move locally.  It isn't ideal, but it means we can carry on with the tests and attending the hospitals we need to without having to transfer care to another area.  We'd only be about four miles away from where we are at the moment, but it would reduce the endless reminders (although won't eradicate them completely) and we'd be on the edge of a small town.  It's a horrible town and not somewhere I want to live but it would be convenient; we could get to the shops and the library easily (walking distance) which would do us both good and cut down on petrol costs.  If we do it for six months it will at least reduce the pressure of living here and make life a bit easier on a practical level.  In six months time we should have more information about his health, which in turn means I can look at colleges from a new perspective and perhaps make different choices (although it may be the ones I was planning to look at still turn out to be the best option).  Longer term, it would also make it easier to move from this area without anyone knowing as I won't be surrounded by all the nosy gossips that I am where we live at the moment.  So perhaps it will turn out to be all for the best.  But at the moment things are very up in the air and I really don't know which way things are going to go.

Anyway - will post more news when I have it!  Hope everyone is okay x

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