Voicelessness and Emotional Survival > Voicelessness and Emotional Survival Message Board
'23 - The Adventure Continues ;)
lighter:
I hope you and B have a wonderful holiday trip and season, Amber.
You guys deserve some time on your own.
About Tupp.... I hope her time away from the board leaves space for more human connection.
She's very wise and it makes sense to me, though she's missed.
Remember your boundaries, dear ((Tupp.))
Always checking for updates.
:Lighter
Hopalong:
How did the cabin getaway go, Amber?
Hope it was GOOD!
hugs
Hops
sKePTiKal:
We both thought the other had loaded the electronics bag. Didn't realize it till we got to Canaan. Stopped & got phone chargers; asked for directions (because even though I had those in my purse - they didn't match up "on the ground". LOL.)
Lots of snow! And COLD... it was 32 when we got in the hot tub; and that was fun but wet bare feet on ice, not so much. House - well it looked like world market had exploded in there. LOL. A little too busy for us. But the furniture was elaborately carved heavy wood; exotic. It was nice just being away from everything.
Coming home, we made the loop through Seneca Rocks - and I think we'll try to stay there in warmer weather. Got home and it was 20 degrees warmer!! Even though we're north of that location. Ski resorts were making snow. Got to use my 4 wheel drive.
We both really needed the break!
sKePTiKal:
Soon gonna need a '24 thread...
and who knows what will happen?
This year hasn't been awful - though the struggles have been "real" LOL. The studio exterior is completed; till spring anyway. I finished insulating the removals in the walls downstairs in the garage. Drywall's up, in the studio above. I can take my time, with the joint compound stage. I'll need to skimcoat some cracks in the ceiling. B is gonna look at installing a ceiling fan (which we need, since we smoke in that space). The rest of the major remodeling is going to happen a step at a time; given when B is here and what else is going on.
Still working thru the trial & error process on his stimulator. Currently on "option 2" of a new program. We'll see how long till symptoms return with this one. Effectively, as much, long, as we need to turn it off so his symptoms clear - he doesn't have that half of the pain mask at all. I'm now documenting everything, looking for patterns. And the doc's office has gotten hostile recently, insisting he jump through excessively impossible hoops. Come to find out, the phenomenon of medical gaslighting, is a "thing" - with even docs talking about how to counter it. The request is rational - that he stop his Rx for oral pain relief and turn in what he hasn't used. Because with the pump & stimulator, even though it's not functioning (which doesn't seem to register with these folks**) should replace any need for the oral drugs. Even though B's experience of the equipment failing and justifying having an alternative also makes sense.
Upshot being, they're piss testing him and require a receipt when he turns in the Rx... however everyone we've called only has a dropbox; no one gives a receipt - not even the DEA, we called them too. In other words, no one believes he isn't taking the Rx in addition to the mask relief or that he isn't selling them on the street. :gggggggggrrrrrrrrrr: Two can play that game and I can do with an evil smile... we'll take the Rx to the next appt and have THEM sign the receipt. Pharmacy said they can't accept or receipt the turn-in, because of their inventory regulations requiring them to report to DEA. DEA won't do it either.
** I found a detailed article, referencing a study done at Oxford that detailed EXACTLY the kinds of symptoms - due to nerve stimulation at this location - he is having and the NP wanted to argue that the hard copy wasn't a an actual study... and refused to accept that the article had a web link to the full study from me. "We've never heard of this before" is an unacceptable dismissal of what I've documented and he experiences.
And they wonder why he has a quick temper in response to their excuses, denying, dismissal, refusal to HEAR him and try to work out a treatment option that WILL help. There is a reason I go to every appt with him because I can stand my ground and not be visibly angry and try to negotiate a better result.
He and I are getting along pretty well; like all couples there's a bit o' friction from time to time. Most of it due to each of us having spent so long in other relationships - and more recently on our own. We both have habits that need to change to accommodate the needs/wishes of the other.
Holly & S ALMOST broke up over Christmas. Long story; you've already got the gist of her discontent. He's quite the drama queen, I must say. But that just runs right off of her. She isn't standing for any emotional blackmail or doing ALL the heavy lifting in the their interactions. (Can't call it a relationship; even after 5 years.) I don't know how it's ultimately going to turn out... but it's heartening to see how much inner work she's doing - in her quest for her personal answers. She's come a damn long way from her teens. He doesn't see the need for any change on his part; no lightbulb moments -- and she is an overachiever in the communication department, even about feelings.
She's had issues with the solar system this winter; and it's been physically uncomfortable due to hardwired smoke alarms. In the middle of the night; upsetting the dogs - and S. While she's trying to manage the "crisis", troubleshoot the system, and seek advice/help. Knuckles was at my front door the next morning and he wanted nothing more than his couch pillows and pets and calm. We're his refuge and second home.
Found disppointment over Christmas, when I tried to hook up my 10 yr old wii system to new tv. Wanted to spend Christmas day in jammies playing games... found pieces I needed that are S'POSED to work, but don't. Hit the tech support websites and still no joy... but in the scheme of things, it's kinda silly to fuss over.
B's been here most of the year, this year. That's been fabulous! And with his help, much is progressing. Next year, we're building woodsheds and clearing more fire break around studio & house. Garden again, of course. More herbs & learning which ones are helpful for his specific pain... and getting him moved & house sold.
And maybe some more fun stuff next year. And for now, it's hibernation season!!!! I need to piddle at the work in the studio, cut out the chemise I'm still debating handsewing (victorian style), change my mind 6 times on studio paint color... and update "the list".
lighter:
What colors are you considering for the studio, Amber?
About the pump and medical gaslighting..... old memories and traumas in my body stretched and found exhaustion as I read about your ongoing experience. The profoundly wrong-ness of paying people in positions of care and protection to harm those they're who's care they're harged with continues to strike a nerve for me. I cant quite describe the sensation, but it's there and my father used to refer to it as "something clicking" in his gut. It clicks in mine too.
I don't know if it's reactivity, exactly, or the universe pointing at outrageous truth. I assume it's some of both.
I hope H figures out the S thing. It's really about her and her relationship with self, isn't it? Not about S, at all. S is her pebble, me'thinks.
Let me know what colors you're thinking of. I'm hoping you choose something you're happy with at every mment of the sun's movement. Sometimes it helps me to look at a sample morning, noon and night.... and quite a large sample.
Lighter
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