Voicelessness and Emotional Survival > Voicelessness and Emotional Survival Message Board
Captain's Log - 2024
sKePTiKal:
Fingers & toes crosses, candles lit, a few pulses of good thoughts throughout the day would be most appreciated! This morning is B's change of stimulator leads location. If we make it a week without side effects, the actual change may be approved/ordered/etc.
sKePTiKal:
Well, that didn't go well at all. After 90 minutes I had to leave the building for fresh air. On my way back in, B was wobbling out with a name of orthopedic surgeon he was getting referred to. Has a couple bandages where doc TRIED to cut thru the scar tissue. Not possible for him.
Ortho surgeon is way the hell in Manassas/Fredericksburg. Has a good reputation but I despise that area and no longer drive into that mess. There are closer docs in WMC in the city over the mountain. I'll be calling them first, with a stack o' questions about insurance and first available appt for a consult as we explain the situation. Maybe today - but I have a new propane company here (local guys) fixing my leaky tank. If not, then Monday.
B was asleep by 2; and basically slept till some time on Wed. Whatever sedative they gave him didn't sit well. Followed by the usual migraine. So we're discussing next steps. He's in a better mood today and I made comfort food last night.
Might have more friends around Thanksgiving week. The excavator friend of Hol's who's been here a lot recently got custody of his son via a CPS investigation of his ex-wife. Logan is 5. Been through a LOT already. Friend will want to work, and Hol & I will entertain the little boy. And of course, B is around. So menu is on my mind, including baking. Bread & cookies, as well as pies. They won't be visiting family, as far as we've heard to date. And it's still possible Amy's young men - my grandsons - could arrive for a visit too. Good chance to get one of those briskets cut up & cooked.
Dreamed it had snowed, too.
SO life is just a combo of everything these days.
Twoapenny:
--- Quote from: sKePTiKal on November 21, 2024, 11:27:46 AM ---Well, that didn't go well at all. After 90 minutes I had to leave the building for fresh air. On my way back in, B was wobbling out with a name of orthopedic surgeon he was getting referred to. Has a couple bandages where doc TRIED to cut thru the scar tissue. Not possible for him.
Ortho surgeon is way the hell in Manassas/Fredericksburg. Has a good reputation but I despise that area and no longer drive into that mess. There are closer docs in WMC in the city over the mountain. I'll be calling them first, with a stack o' questions about insurance and first available appt for a consult as we explain the situation. Maybe today - but I have a new propane company here (local guys) fixing my leaky tank. If not, then Monday.
B was asleep by 2; and basically slept till some time on Wed. Whatever sedative they gave him didn't sit well. Followed by the usual migraine. So we're discussing next steps. He's in a better mood today and I made comfort food last night.
Might have more friends around Thanksgiving week. The excavator friend of Hol's who's been here a lot recently got custody of his son via a CPS investigation of his ex-wife. Logan is 5. Been through a LOT already. Friend will want to work, and Hol & I will entertain the little boy. And of course, B is around. So menu is on my mind, including baking. Bread & cookies, as well as pies. They won't be visiting family, as far as we've heard to date. And it's still possible Amy's young men - my grandsons - could arrive for a visit too. Good chance to get one of those briskets cut up & cooked.
Dreamed it had snowed, too.
SO life is just a combo of everything these days.
--- End quote ---
Skep, I'm so sorry you've had yet another set back with this. It's so dispiriting and debilitating, you must both be exhausted from it all, not least from having to keep coming up with a new plan each time. I hope there is a doctor closer to home, the stress of travelling to places that are either further away or a nightmare to get to (or both!) just adds to the frustration. I'm frustrated for you, although glad for B that he has you there for him. Must be a comfort to him not to have to do this alone, although exhausting for you to keep managing it all on top of everything else. He sounds like he's worth it, though :)
I hope your Thanksgiving week is a good one. Kind of need Holly to date a surgeon or something, that might help ;) Kidding, of course, but it would be nice if something just happened and even if an absolute solution wasn't perfect, at least when the situation is stable you can build your coping strategies around it and make it part of day to day life, instead of having the constant disruption all the time x
sKePTiKal:
Thanks Tupp. It is a lot to deal with and it's way better that he has me to help, now. His mindset always reverts back to past (horrific) experiences... and I can be more objective.
As a consolation, he had a late lunch of liver & onions yesterday and ordered another plate to-go for today.
What I really wish, is that there was a better understanding of the neuro differences that cause pain to be felt subjectively... and better pain palliatives to match that subjectivity. (I don't want much but the moon, ya know?)
Today's challenge is researching Hol's off grid solar system. Her genny was on/off every 10 mins last night because yesterday was so overcast. Thinks she needs new batteries.
lighter:
I'm so sorry roadblocks consistently require detour after detour and off road roughing it, for B, Amber.🥺
Lighter
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