((((Tupp))))
I get what you're saying.... so very much.
You're in a doubling bind with business of caring for your son/self. They're both necessary. You can't do them perfectly.
Sometimes when I'm stressed it's impossible to think outside the box. If what I'm doing isn't working, the logical conclusion is that I have to come up with a better plan, and find a way to put it in place. That means I have to STOP acting out of habit/survival mode. I have to explore changes. Part of the process is being aware and taking stock. I can't do that when I'm operating out of fear and exhaustion. I can't.
My girls aren't defenseless young children any longer, just as your son is growing up, and gaining strength. Yes, our children have needs...... my oldest is healing, and your son has ongoing needs, but..... how much help do they need, and how can we accurately gage the level of help/trying to fix them is healthy. We help them get stronger too when we're on target, seeing what's in front of us NOW, and not in the past.
Have we fully evaluated and internalized the changes in our children? Can we step out of protective mama bear mode long enough to SEE the truth? I sure hope so.... I'm trying. That particular subject resonates with me deeply right now, as does the self care piece.
I do believe you and I are operating from a hyper vigilant state..... for years this is true. Too many years. Maybe this time, if we find a way to stop being so vigilant.... we won't get smacked in the chops THIS TIME? It wasn't true for years, but now?
We're like Pavlov's dogs..... we've been conditioned.
Unlearning..... finding new habits, and putting them in place.... just so difficult, and esp if we're beating ourselves up for not being able to just make changes. SO not helpful, and we both do that.... I know we do.
I think part of it is the trauma trapped in our skin, organs, and bones. We can intellectualize all day long, but if it's IN our cells.... we have to find other ways to approach the tender spots, and remove them, IME. I think trauma lives in everyone's bodies, btw. Not just ours.
I'm researching Somatic Therapy right now..... along with the Brain Integration, and I'm hopeful about it. I speak with a T every two weeks who shares a similar history.... she actually divorced her ASPD. It's helpful, and she's all about the Somatic T.
I'm letting panic wash over me as it comes..... trying to do nothing when it hits..... waiting for pressure to release, if just a bit, and it always does, IME. Learning to withstand the discomfort long enough to think clearly again, so I can shift to creative solutions. I try to think outside the box. I try to find who I was, inside, and pull her back into the light..... ask her for help. I need her. I miss her. I need her strength and fearlessness.
It's difficult to be hopeful consistently. I'm sure it's a roller coaster for you as well.
There's a lot of fear, I'm realizing. more than I want to admit. I find it shameful have so much fear. It's debilitating though.... I have to face it, and work it out. What's the truth, and what can I do about it? What do I have to let go of, and just accept?
As for you and self care, my dear...... I'm guessing sleep is something you need and choose over getting up before your son wakes? I'm wondering if getting up early, doing yoga/something endorphin producing, even if it costs you something in the short term... might lead to feeling better in the long run?
I'm wondering if you can apply for a motorized wheel chair to lower the physical strain your body takes? There's been so many changes in your son's condition/dx. CAN you ask for that? Perhaps our son would be served well in that case? Perhaps not. I don't know... just throwing it out there. Very often they're for sale, used, (or at Goodwill) around here.
Perhaps you and your son could find a new rhythm for the breaks you need for yourself? Longer...... without expectation they'll happen over night, but something to work towards? Change is so hard, and Spring is on it's way. Perhaps he can go into the garden with you, and work into new habits from there? I can imagine change for him is quite upsetting..... it's never going to be easy. It's always a struggle, and costs energy you don't have.
I know we need our best selves to find solutions..... less fear and panic. It's hard to come from a place of exhaustion, and paralysis... hard to improve situations, IME. I wonder if one of your new neighbors could help you brain storm? You deserve some support and fellowship around this, IMO, Tupp. Maybe you won't always have to do everything yourself? Maybe you can find some respite you didn't have before in this new place with such nice people? Groups for support and help... are there any in your neighborhood?
How to let go of the old thought patterns, and embrace new habits/thoughts to improve our health, and ability to respond?
OK... lets do this. Let's pat ourselves on the back for being present, protective mothers who care deeply, as a priority, for our children.
::pat pat pat::
We get that, and it's ours..... that belongs to us.
Now that they're growing up, what are their needs? I think we have to find that truth, and begin with that piece perhaps?
::sending Tupp reassurance that things will get better with perseverance::
I promise.....
for both of us, ((((Tupp))))
Lighter