you are all so kind to me.
Today was scary, the worst day I ever had. That's saying something!
It was kind of like being psychotic but having complete insight into it, I felt such despair and no faith.
It has hit me this week:
I probably can't have another baby; I always wanted another child and I don't think it's going to happen now, i need to put that dream away;
I can't continue to work this hard, so financially I am going to struggle; I live month to month and still haven't put away my tax for next year;
managing my illness probably means no relationships.
I just can't cope with the emotional turmoil they make, and stay stable.
That was something I really really wanted, to have an affectionate romantic sexual relationship.
I don't think I can.
I have hoped and hoped, but it's not possible to let anyone close enough or fair for anyone to cope with this illness and the demands it makes.
I love this church guy man, but I can feel my illness coming on the closer he gets, I just can't risk it.
This is the first time I have lost hope and couldn't find anything to hang on to, to look forward to, I feel like everything I had told myself to get through I can't rely on now, I guess I will have to come up with more plans, and especially health plans and financial plans.
Thank you so much for all the positive comments and suggestions, I am weary.
The church thing was the last straw, but i am determined this is not my crusade.
I could have really done with it as a place of support, but I saw the new pastor and he gave me a filthy look this week.
He ignored my email and I am already hearign reports about his sexist behaviour.
Tomorrow is my last day there. He won't be there, thank G_d!
I've never felt like this before Bean, calm and defeated....
I did continue with self-care though you'll all be pleased to hear, I went to the Lutheran Church and sang in the candelight service, then for a cute cake and hot tea at a bistro; then I went to swim. I talked to a couple of friends but to be honest, people don't like it when i am down.
Most people know me as positive and it scares them if I am not; they have seen me cope and cope, and think it means they won't cope if I can't!
Course most people don't have to live with this illness, it really is hard sometimes, trying to keep everything afloat.
This week I almost sank, I worked too hard and yesterday being caught in rain and floodwater for 2 hours just tipped me over I guess.
A nice thing happened at work. A colleague told me one of the patients I talk to told her she just loves me and I have made a difference in her life. This si someone who is immobile, totaly helpless, and I have really worked hard to convince her that she is still useful and to keep her spirits up. Everyone was overwhelmed because it seemed so hopeless and painful, it was like no one knew what to say to her, now they joke and talk and have lots of rituals to keep her busy. This wasn't just me, but i do remember being the one who went in her room and realised that she was lost there, and excluded, and deciding to do something about it.
That was when that horrible nurse was mean to me, I wrote about it last year and the year before. She was asked to leave btw when everyone had enough of similar outbursts!
I am so glad i persevered, and I feel slightly ashamed to have such hopeless feelings, when she copes with much worse than me.
She prays for me every day. A lot of people do, I do for them too.
Work is very important to me, I will be upset if I have to give it up especially if it's for stupid stupid money.
Guess I need a new plan. One which takes account of my own special circumstances and includes contingencies for if i get sick.
I'll work on that next....
Thanks for saying you love me, I love you too.
I've never felt more like being held and rocked and have someone say, it will be okay.
But there isn't anyone to do that, so i'll go have a cup of tea and read my book and pretend I am a grown-up and can rationalise all the broken-heartedness which spilled out today....