Author Topic: Deconstructing Self-Abuse Patterns  (Read 12360 times)

sKePTiKal

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Re: Deconstructing Self-Abuse Patterns
« Reply #15 on: October 14, 2010, 09:13:31 AM »
Thanks, SF... I've used that analogy, too; along with smoke signals - as in SOS - someone please HELP me. A silent (voiceless) cry for help... over the years, I've talked my way all the way into, under, around, above/below and yes, through - too - the whole phenomena of smoking. Doesn't help one wit. In fact, one of the oddities about my smoking habit is that all that attention only makes it worse; increases the activity. Like the resentful teen I was when I started smoking... pouting that: "I can do what I want and you can't tell me what to do"... "I'm not hurting you - if anything, this only hurts myself". And all this from a kid who knew smoking was lethal - before the surgeon general put his labels on the packs: I watched how smoking killed an aunt who was a lifeline during my traumatic times; lung cancer kill someone else. That's really what it is, you see: an intentional decision to do something that would kill me.... made a long time ago... when I and my life were very different.

Now, I'm looking way beyond the smoking itself - deeper into the emotional patterns, I guess you'd say; into my attachment issues; and even how my peculiar brain/body interact with each other - for the genesis of what appears to be an intentional self-destuctive decision that refuses to even allow for the possibility of "letting go" of the "soft white sticks".

I have to confess: all those journals that I allowed my "hidden, inner child" self to fill with her loss and rage and conversation and the relationship between us, that has grown over time; all that writing wouldn't have happened without cigarettes. Sometimes, I'd argue that she didn't need to smoke to write; to remember... and I provided concrete examples: proof... but any time an intense emotional topic arose... there needed to be a cigarette or a pack... for her to face and relate it.... and to let me help her put that chapter, or event - to rest.

As that pre-teen kid with the world on her shoulders that disintegrated into a thousand shattered pieces in the course of 1 day... she was already pretty well-read and was never without a stack of books; she resented the librarian who put adult non-fiction "off-limits" simply due to her age... Twiggy NEEDED that information. As well, she was completely unschooled in emotions and managing them - and really wasn't aware of it; her emotional self was that of a younger kid - fond of fairy tales, happy endings, and a need to be liked; approved by adults - the validation of self that seriously lacking at home.

I "think"... maybe... I became convinced that since a.) I couldn't stop feeling things and b.) I couldn't feel in the "approved" manner and c.) I felt things quite intensely... that I determined (in my kid-logic way) that I was so seriously flawed as a person that I should've been left on a mountaintop as an infant to die. I think that's what I thought... but since "I" already was "so old"... a teenager already... I decided to opt for other methods. It might take longer, sure - but it was also a sure thing, in my mind.

Where I get totally lost in trying to retrace what I thought & felt back then... what I did and decided... is when I try to reconcile the above with the fact that I was absolutely 100% concentrated on, dedicated to, and ruthlessly determined to:

survive.
Success is never final, failure is never fatal.

sKePTiKal

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Re: Deconstructing Self-Abuse Patterns
« Reply #16 on: October 16, 2010, 10:55:39 AM »
  sorry about above spoonerisms, dislexic spelling, its late here, I'll shut up in a minute....

One more thing, I needed to (no, 2 more things), I needed to understand this it wasnt just about Nism, or some dysfunctional family.   I could see that there is a dynamic between all the disorders, one giving rise to another, and it perpetuates until someone sees it and stops the buck.  As hopefully we are doing here. 

the other thing I needed was someway to connect into the world from the place of this understanding, and not be blocked off with it all, 'the only one to see'. 

So, you, or anyone whose interested, Id like to talk further about .... Im interested in creating proper paths to healing with these models 

                any way, Im up too long, its after Midnight.....  :  0    see you in the morning : o )    and thanks for communicating all this...

Hey there, river...

I've been digesting the website you suggested. It is sort of strange to see some of the exact same words I've used to talk about myself and what "happened" to me coming from another source. And part of my brain is really objecting to the word "schizoid" in all of it, too. As in, NO, that's not me... nope; you're wrong... schizoids have a biological brain disorder... so it's wrongly applied to me...

and then the author quoted Daniel Schore. Ooops. Schore was a huge revelation for me, in the work that I've done so far. So helpful. So dead-on descriptive - going from the neuroscience, through the levels of inner experience/emotion, to external behavior. Connecting, unifying, synthesizing... facts about various realms of being. And how inappropriate maternal attachment sets the misaligned pattern for later brain-being development.

So, I find I have to accept that word - in it's meaning of being split; duality - because I am intimately acquainted with projective identification; introjection; the slave-master relationship; being the family "dustbuster", "sentry", etc... oh and the biggest connection for me was the word: integrity. I know exactly what incident was the last straw for me - when I had to accept the reality of the betrayal bond - and perhaps coincidentally; perhaps it's linked - that is the same time frame when smoking became more than "experimental" and when a "witch-doctor" described for me the process of "splitting" myself and recommending that if the pain became "too much" that I could do this - and still continue living. Yes, I believe she was a psychologist or psychiatrist. She apologized for only offering me that "way out", because we only had time to meet once. In some ways, this did save my life... but it was also a huge obstacle that I didn't understand about myself, too.

You see, I was resisting this technique of compromise/survival and fighting it with everything I could think of. That resulted in a kind of emotional "stuck record needle" of rage, flipping into inconsolable grief on the "b" side. Over the summer vacation... it wasn't a problem. But you see, the rest of my brain couldn't function at all - writing, reading, thinking linearly were practically impossible - and school was starting in a month. That "split" - when I put Twiggy into the chinese box - was necessary to continuing on with my life and I knew also, that education and attaining adulthood were the only viable means of "escape" open to me.

But all that is beside the point now. You want to know about how to go about recovery - and so do I. To be fair to myself and honest with you, I have to say that I'm pretty well along that path, even though I still cling to this group of people online because of the relationships that have formed over time. This place is my touchstone of validation, understanding and caring - when I'm finding it hard to do this myself, am not recognizing this in my 3-D relationships or don't even know that I have this need. These relationships have been and continue to be absolutely essential to my healing.

Where I'm currently at and what I'm staring down and confronting is what is described on the exile site as "the internal sabateur". I can understand some things about it - like how it popped into being as a reaction to boundary intrusions; introjections; projective identification, etc. What I'm not sure about at the moment is whether or not it is really me, and something that I should claim as myself - and love it back into it's proper "place'... or if it's really not me - being instead the content pushed into; onto me. I'll be sitting with that for a bit; pondering and observing. What SallyingForth said about smoking being a "smokescreen" fits here... sort of a means for me to be "me" - and not Nm - and still co-exist in relationship with her, without withdrawing completely.

My experience so far, working on this, is that one can't deal directly with the inner subversive. So instead, I've ignored it and simply gone about working on expressing feelings & needs, opening myself to relationships, strengthening boundaries... putting my obsessive attention on positive things and being as much "me" as I can - without the "good-bad" labels and judgements. It seems to be filling up some kind of beaker on a balance... and diminishing the control/necessity of the subversive... and removing the need for it's existence. I have had increasing "moments" when I've been completely, totally "whole me" again - and have experienced a sense that this was breaking some sort of taboo; breaking a rule; or crossing some dangerous line... only to find/discover that "nothing bad happened" because of it. And that builds confidence in myself; re-establishes my sense of integrity in myself - my wholeness as a person; and also "innoculates" me and builds more immunity to being triggered back into the same old patterns by new incidents that resemble old abuses/trauma.

The more I can do this... I find that the less I smoke. You won't find this technique in any of the quitting literature. But it's working - albeit slowly - for me.
Success is never final, failure is never fatal.

sKePTiKal

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Re: Deconstructing Self-Abuse Patterns
« Reply #17 on: October 17, 2010, 10:20:06 AM »
So..... I'm thinking that perhaps everyone has a capacity for this kind of splitting; duality of self. That it is a fail-safe design "option" (if... then.... else) of how humans are actually designed. Sort of like dissociation or Stockholm Syndrome - in that, in an extreme situation we humans are able to twist ourselves into any configuration of "consciousness" necessary to ensure ego-survival. Just as each person is a totally unique individual - different levels of sensitivity to external conditions imposed on one can trigger to a greater or lesser degree the fail-safe, "last resort" option built into our brains.

Here's where I might differ in opinion from others: I believe that if it's possible to distort our "selves" to survive that kind of dire situation... it's also possible to put things right. But, there's no one size fits all remedy for that - even if there do appear to be aspects of the task, that we, collectively, share in common.

High up on that list of skills that lend themselves to these tasks, is the ability to self-observe I think. What my T called, the "observing ego", which I think might correspond to a higher level processing center of the brain. It's able to absorb the raw, intense, emotional signals of the flight/freeze/fight centers of the brain - signals that contributed to a "self-in-exile" survival strategy in the first place - and slow down the analysis, tease apart tangled emotions, evaluate utility, validate reality based on external signals from the senses, and modulate physical responses - the jittery, jumpy fear or anxiety carried along the pathways of the sympathetic nervous system. This is the part of the brain, that enables the ability to speak, write in 3rd person narrative... again, I THINK. And it's an important tool, for me.

I also propose, that in a traumatic life/death situation - or in a continously abusive situation - I think sometimes, the ability to engage that part of the brain "leaves" us; we can't quite make the shift into that level of the brain and using that tool. So, like a stroke victim - we have a bunch of pieces of experience; very real, very clear sensory data and a lot of reflex, instinctive - one could say regressive "kid logic" - type "thinking" patterns that emerge. And these are experienced and expressed in a disjointed fashion - the natural connecting bits of language, narrative, and linear sequencing goes out the window. Think of how someone who's just experienced a very frightening situation talks - everything is jumbled; disjointed; out of sequence and each little bit expressed is of equal importance.... and it's only after some time, and an acknowledgement of "oh - I'm safe now; oh - there's someone else here; oh - it's OK" that the person is able to "tell the story" in a way that "makes sense" - has meaning and is understandable to others.

It's that time period of brain-regrouping that's important to HOW we develop that story. Whether there really is another person - a "safe" person, there. Whether we are alone. Whether we bounce from frying pan into fire... or whether we find a safe place simply to rest. And whether or not, we are able to reboot the higher level processing parts of our brains... and keep all the parts of our "selves" together, in the usual amounts and order. Sometimes - that regressive emergence of "kid-logic" also gets "stuck" in our brains; a self-descriptive identity that we've already grown out of gets pasted back on top of our current selves... as a way of "remembering" who we were - BEFORE.

The real "horror of my situation" that sent me over the edge wasn't the violence; the rape. I understood violence and how it worked; I didn't feel that I'd especially "brought this on myself". It was awful; I thought I was dying or dead. But, the real horror was confronting the fact of my mother's denial of the reality of what had happened to me. And her own part of responsibility in the drama we all experienced. And how she rationalized it all away with what Dr. G calls a "soothing distortion" and I call a lie - and my real trauma occurred when I refused to agree with her version of events. That provoked the campaign of brainwashing and propaganda, which she'd been working on anyway... trying to get me to side with her and vilify my dad, in her war of righteousness with him, to muster up the courage to divorce him. And of course - later, as well. It was probably a year or so later, that I finally realized she was - and remains - mentally ill.

While I was struggling with the idea, that I could "put part of myself away"... so that my brain would function well enough to go to school, the one thing I kept thinking was that I wished, I wanted, would do anything at all - to be like BEFORE. Well - things just don't work that way in real life. But because that "before me" was the one who got me into trouble with my mom - because the "before me" was dangerous in ways that I simply couldn't defend against at that age... It was the "before me" that went into exile; hiding... and it was the "before me" that had such a strong survival instinct, that turned into the "internal sabateur". That was bold enough to smoke and not care if it killed me. That wanted to send "smoke signals" up and hope a hero would come rescue me; would see me through the facades and the haze. And it was the before me who resisted all attempts to quit smoking - because in a way, the self that I am now is responsible for abandoning her 40 years ago. She lived in a world where you punished people for any little thing. Where violence was a fact of life. And she was pretty mad at me - and I've had to admit that I can see why, to her. I've had to try to repair the relationship - without demanding a thing of her.

Like putting out a bowl of milk to entice a feral cat.

And I've had to let her rant, rave, and carry on... I've had to endure all kinds of snippets of emotional, sensory, and even physical memory that she "shows" me... and I've had to hug her over & over; thank her; and show her respect and compassion and kindness and even forgiveness... and slowly but surely re-establish trust and introduce the idea that the "before" is in the past and can't be "now"... but that she can be "now" in my current life because it's no longer dangerous and I miss her... and while she "still wants a mommy"... I can do that for her - mother my own self - she's also big enough to not need one as much. And so she's matured; grown-up; grown into "me".

I've had to forgive her, for accepting the temptation of addiction to smoking. I've had to teach her how shame, fear, and abuse were the real cause of her "need" to "hide in plain sight". How maternal neglect left her with the barest of emotional education... and how she had to find a way to satisfy her own needs. And I've had to forgive her for wishing she was dead... and using smoking addiction as her way of "getting there".

and lord knows - it's taken me a hell of a lot of words and babbling over & over & over ad nauseum - to finally get to the point where we're both of us - the "now me" and the "before me" - on the same wavelength. Where it's just Amber... past, present, dippy, and smart... and smart-ass or irreverent... and vulnerable and emotional... all those things that I can be at any given moment.... and all that "separation" is over - done - fixed.

And now, maybe, I can go on and talk about other things!  :D

Success is never final, failure is never fatal.

lighter

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Re: Deconstructing Self-Abuse Patterns
« Reply #18 on: October 19, 2010, 10:04:38 AM »
(((Amber)))

::still amazed::

Light

sKePTiKal

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Re: Deconstructing Self-Abuse Patterns
« Reply #19 on: October 20, 2010, 11:36:16 AM »
HUH... lighter... I'm still just trying to survive, ya know? Albeit, with a little more style, fun and bright colors and flavors, these days.

After letting the above "sit" for a few days, I've sort of realized part of the reason I've been at another "brick wall" is because I can forgive the "other, wounded me" as much as I can... but until she forgives me... well, it's impasse time. I mean, there literally wasn't anyone to care - except me. Anyone to try to think about how it all "made sense" - except me. Anyone to choose a "plan" for escape that had any possibility of being realized - except me.

In some ways, it's as if my Left & Right Brain were two independently functioning identities (see: Jill Bolte Taylor's "Stroke of Insight"). Two countries without diplomatic relations or even communication at critical times. Rbrain's existence was so painful - emotionally, intellectually and even physically - that it hurt to breathe; literally. That pain blotted out all but the most juvenile memories of "good; feels good" existence. In that circumstance, death literally didn't seem so awful and might even turn out to have some relief, or positive unintended side effects...

The way back to functioning, was Left Brain - the "me" that could decode words while reading... who could understand processes - linear and otherwise - and I knew that nicotine was a huge activator of Left Brain activity, from experimental experience. As that 12-13 yr old, I was completely convinced that I could understand what was happening to me, what was wrong with my mother, and how to correct it - if only I was "smart" enough; somewhere there was a sacred piece of information that would make it all "make sense". So, that's when my "search" started. Trying to find answers. This was convenient, because it also supported what I saw as my "only way out" of the FOO roles and being the "straight man" for some relational joke that was always on me (or shame or anger)... that I never saw coming because I felt I wasn't "smart enough" to see the "gotchas" in how I was being set up... I trusted; but I was trusting the wrong people. Anyway, my way out was school. I would "get smart", get a good job, and not ever have to go back to "mom". At school, of course, teachers responded to my drive and motivation to learn and master whatever was thrown at me. As I began writing a few things, teachers also responded to the depth of experience I'd already had and the insights that provided... though I wasn't aware that this was anything unusual. Typically, high school kids aren't that well acquainted with that level of loss and grief - and dysfunctional families - as I was. And I usually sought out the kids who did understand - while not ever becoming a "part of the group". I floated amongst a lot of the social circles... observing... comparing... evaluating... judging... trying to figure out if I "belonged" anywhere.

And yes, smoking. It served a functional purpose and I "believed" in the ability of nicotine to help me "think" better. It was also a way to "hide" my real self (the wounded, vulnerable, intensely emotional exiled part) in plain sight. It was "how I connected" to people, as well... because I was "safe" behind my cigarette (and my Left brain)... and I also "protected" others from dealing with that self (as my mom required of me). So I learned the technique of "conditional thinking"... ie, as long as that part of me was "hidden" behind the smoke screen - it was OK, permitted, allowed - to interact with others. It was even necessary for my ability to connect Lbrain "me" - with that more Rbrain, exiled me. And so I chain-smoked my way through the pages of journaled, channelled ranting & wailing of the "exile". Just like I did with all my paintings and other art work. It was how I learned to connect both parts of my brain; and perhaps (this is just theorizing) even kickstarting a higher processing center of my brain.

::sigh::  See the parallel with an insecure or disordered attachment style? I coined a phrase for this: the comfort that kills. Kinda says it all about smoking AND my relationship with my mom. What I didn't know, experientially or intellectually, at the time I realized that smoking helped Lbrain functioning... was the deal I was making. The exiled "me" was desperate and willing to sell my soul - which is another way of saying I accepted the addiction part of smoking as a "means to an end"; a pragmatic bargain with consequences I was able to postpone dealing with - until some fuzzy moment "later". The "exile me" didn't really care if this was ultimately fatal; that was just fine with her. The smoking was the ONLY link between "me" and "her" - a lifeline of sorts; self-validation even. The "exile me" WAS the reason I smoke; why I couldn't stop - I couldn't let go of her, she was also "me". And even though she was willing to sacrifice herself for some - any - relief... she was still the main source of my survival instinct; that intensity and relentless drive. And therefore: the absolute and total resistance (and experienced discomfort for Lbrain "me") to not having the cigarettes around and smoking them.

This was still the main question underlying all my other questions - even in my last "tune-up" session with my T. Why can't I quit smoking - why is it, all the techniques that work for others, fail?? I was so frustrated with it... working on it... trying to "see" what I had to be missing that would provide the "answer" so I would know how to go about this successfully - and I've frustrated and bored so many of you here, with the circling back time & again to this that I just dropped it and tried to approach it from another flanking direction. Thinking: OK, maybe I can get there by tunnelling all the way through this other mountain... nope.

So, from that last session with my T... two things remain implanted in my brain. One is, that she said she's found that rationalizations (excuses is another word for this) have a particular stench or color or aura - they stand out in our thinking, no matter how scientific, or valid, or important the rationalization tries to make itself appear. And that she's learned that rationalizations are simply time-wasters, so she tries to snuff them out, shut them up the minute she becomes aware of that particular thought's "true nature". People have told me, that I am the "Queen of Excuses"... and I believe that it's the "exile me" that's behind those excuses... with a rebellious "I don't wanna"... and also a valid fear: a fear that without the smoking that she'll simply disappear; cease to exist. (Referencing the "shunned" experience, gaslighting and her "chinese box".)

The second thing we talked about, since I'd figured out the attachment issues were the source point for everything else and started owning it... was that she said it sounded as if I were seeking the "archetypal mother". Talking through that some, I realized the only way to "find" that - was to become it, or at least try and work on it. Well - at the time - that went nowhere pretty quickly. It just sort of fizzled out as any kind of healing technique or path. Except: in the context of the "exile me" or "inner child" work. Or for another image, trying to gain the trust of a feral cat and domesticate it.

Maybe it was finding the real cat in the parking lot - her little paws were burnt from the blazing asphalt - and our instant recognition of each other (she jumped into my arms without hesitation, even after I dropped my purse & startled her) - maybe it was the relationship with the real kitty that symbolized the unobservable relationship change between "me" and my feral "exile me" - and our complete understanding and instant bonding with each other and mutual respect and development of trust... that worked to start the process working on me & me. This kitty has boundaries and lets me know them - usually very gently. I'm still working on teaching her mine - but she responds (very un-catlike) to my voice commands. And though she's becoming comfortable around other people - she makes it clear that she is "my" cat. She sits with me while I post and is usually very behaved and just "here". She wants recognition of her presence, only rarely demanding it.

That boundary setting has been happening between the split parts of me, too. And while I've often giggled at some of the wilder whims of exile me... she's such a sarcastic smart ass... I've been teaching her ways to be in my "world", just as she is - without the hiding, without the smokescreen... little by little... over time. As opportunities present themselves, she's been "allowed" to express herself, as herself. So that - we're not as separate and distinctly "different" anymore... and she realizes I'm not going to "sell her out" and she relaxes and the fear recedes... and that while I'm not her "archetypal mother", I'm also not too bad at this... and we have started to mirror/mark each other... and slowly - sort on a geological-change time frame - slowly but surely, those attachment issues are becoming less of an obstacle... and there's less need for excuses/rationalizations... and smoking simply becomes less - seemingly on it's own without effort - because the "necessity" of the smokescreen doesn't exist anymore. I basically "forget" to smoke. And it's taken a very, very long time and requires patience on my part - to convince her that's safe, OK, and that I believe she can do this - and will even help. She is also able to help - by being more present & conscious and not clinging to her "excuses" more than being engaged in other things. That's a bad habit she picked up from mom; and it doesn't fit either one of us - her passionate nature or my GitRdone processes.

So that, like how my kitty comes and snuggles up next to me for her morning nap now... the exile me will snuggle up to "me" and luxuriate in the comfort of not having to struggle or be vigilant or on guard - hiding - anymore. 'Coz I've got her back and she's got mine.

And we do other things instead of "hiding" now... behind smoking... more often.
Success is never final, failure is never fatal.

sKePTiKal

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Re: Deconstructing Self-Abuse Patterns
« Reply #20 on: November 03, 2010, 07:21:05 AM »
Glacial progresss....

tracking number smoked connects into Twiggy's careful tracking of number of puffs... at the very beginning of the process.
Success is never final, failure is never fatal.

Hopalong

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Re: Deconstructing Self-Abuse Patterns
« Reply #21 on: November 04, 2010, 12:30:14 AM »
I love you, PR...

and I don't think she needs to forgive you at all.
You are her mother and you love her.

She's just glad to be at peace, quietly resting, connected and integrated and whole with you.

I bet there has never been an issue of forgiveness. Nothing to forgive.

xxxxoooo

Hops
"That'll do, pig, that'll do."

lighter

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Re: Deconstructing Self-Abuse Patterns
« Reply #22 on: November 04, 2010, 07:11:39 AM »
HUH... lighter... I'm still just trying to survive, ya know? Albeit, with a little more style, fun and bright colors and flavors, these days.


And we do other things instead of "hiding" now... behind smoking... more often.



Amber:

Here's to doing other things........ with a little more style, fun and bright colors and flavors: )

Question:  Have you read many of  Joseph Campbell's books, and if so.....  is it helping?

((()))Lighter

ps  It's about time for another Amazon circle.... I have the perfect yard for the bonfire.  My fur loin cloth's still in boxes, darnit, but I found my sandals and sword.

sKePTiKal

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Re: Deconstructing Self-Abuse Patterns
« Reply #23 on: November 05, 2010, 07:38:36 AM »
I'm leaning more toward the Jean D'Arc chain mail, sword at the ready and a sturdy pair of chinese kung fu shoes & leather strapped leggings... the better to leap onto my black stallion bareback and race off to meet the "enemy" at full tilt like some mad scotch-irish warrior princess. (I am nothing, if not a multiculturally mixed metaphor!!)

The little blip I posted a couple days ago was the start of like a weekly eval - that got cut short. I had to don the above and ride into action with MIL. At 6:30 am, no less... which is my sacrosant "me" time when I usually check in here and post, among other things. And then, I didn't "come up for air" for 2 days. I was finally handing off my cold to hubby (who is now totally miserable, poor thing, just like I was) and we basically spent 2 days in freezing temps in the hospital - seriously, something was wrong with their HVAC and they were handing out heated blankets, even in waiting rooms.

MIL's Coumadin balance - which has been fine - unbeknownst to any of us, went completely wacko. Maybe the cancer drug she's taking has something to do with it - even the ER Doc said we probably wouldn't ever be able to say what caused it - but the symptoms showed up in tremendous pain in her thigh muscles and she couldn't walk, unassisted. His guess was that she was bleeding into the muscle, which is what made it swell and tighten up like a rock. She improved quite a bit after getting some real sleep and with treatment, overnight... tho' she still has a lot of pain trying to move that leg. Which is a good thing, since she had her regular monthly tests at the hospital the next day. We make a run into her Dr's office this afternoon for another check on her coumadin levels and a chat with the Dr - who's been monitoring this level on a monthly basis. It would appear this drug needs to be adjusted and perhaps monitored more closely.

So I've been "on call" to help her get around, bring her things, help her dress... and try to get her to eat. And that has been a battle of wills. I think sometimes, she doesn't accurately perceive how little her portions are - she stops me filling her plate after 1 Tsp, literally - of veggies or sides and only eats 1/2 of a normal portion of meat. Then, the other day, she said that after she eats a few bites she feels that she will be sick if she eats more than that. I've seen her only eat two bites and believe she's "full".

Yesterday, she said that she felt disgusted that she needed my help to get from bed to the bathroom. Well, I get it. She's practically famous in the family for her independence - she was widowed in '72 and raised hubby's two much younger sibs alone. God forbid I pick up milk for her at the store - she wants to know how much it cost so she can pay me... and doesn't believe us when we tell her a prescription only cost $ .68 - I have to show her the receipt. She writes me a rent check every month... sigh!! And she doesn't understand that money isn't a concern for us, now. She really, really, really doesn't want to be dependent on anyone... a burden, in her mind. So, instead of calling me when her leg kept her from falling asleep that night - she waited until morning. I had to explain to her that I didn't want her to do that again - she thought she was being considerate and doing me a favor - I had to tell her, that she didn't deserve to be in that much pain and it didn't matter what time of night it was, I always hear the phone and I'd be glad run downstairs and try to help. It's not like I have job/family commitments other than her and hubby and my fat, grumpy old dog.

Geriatric care is a complex thing, because there are usually multiple issues - and consequently multiple treatments going on and the balance between them all is a delicate thing There has to be communication and coordination between everyone. She's had a stroke - and while she's recovered better than most do, there are still some minor neuro issues and I'm trying to suss out whether there are some I'm not aware of (and I also worry I might be imagining some, too). She's had lung surgery - and the recovery time was almost 2 years; in that 2 years she lost a lot of muscle tone and strength. She has an irregular heartbeat and takes a drug for that - and also takes blood pressure/cholesterol medication with the coumadin. Then there was radiation... and now a biologic cancer "maintenance" drug. I had pushed the oncologist about drug interactions, at the time he prescribed and he made an interesting observation - that since her cancer seems to be going into a more active phase, it didn't make a lot of sense to worry about preventing high cholesterol and as far as he was concerned, if a problem arose, he didn't see why she couldn't stop taking that medication. I wonder, if he would say the same thing, if he knew the meds were making her stomach so sensitive she wasn't eating enough?? And there are so many pills, with so many different - sometimes conflicting - instructions I can't even keep them straight.

She doesn't argue with the doctors; she just does everything she's told (or she tries to) - and she never questions whether one Dr's advice goes with or conflicts with the others. Even when the results are obviously making her feel worse. It's time for me to swallow hard, interfere, and get everyone on the same page, I think. I don't think she's been specific with the Drs about the effects of all these drugs - and even though they've all got the same list - they're not aware that she doesn't feel like she can eat and I know she doesn't drink enough liquids. We went through a dehydration episode last fall.

What matters most to MIL - and to me, for her - is that she can maintain as much of her "normal" quality of life as possible. Since she showed improvement with her leg yesterday, I went out and got her one of those canes with 4 feet, that will stand up on it's own. After she demonstrated that she could get around by herself - and I of course, applauded - she's been able to regain some of her privacy and dignity. I want her to have her boundaries; her privacy and her dignity. But not at the risk of her not asking for help when she's in pain or not eating or mixing up one of these dozen medications. So I've got to risk making her mad at me today, because I'm going to push her GP to talk to the oncologist and see what meds we can drop out... to solve the nausea issue; I don't want him to add another pill to mix. Neither does she - but she won't tell him that.

Yesterday, I was thinking that I really have to face facts - whether she's ready to do that or not. Two days of physically assisting her - and not having a chance to rest or eat myself - just about did me in. Yeah, we got really good at walking together - teehee! - like in a potato sack race but I'm going to have a long soak in the tub for my sore muscles today. If she winds up becoming bed ridden and needing that level of long term care - I'm not up to it. Not without help. Hubby's noticed, too. I totally crashed yesterday afternoon and was snoring on the couch at 8:30. I'm going to have to plan ahead because this was just a heads up for what we'll have to deal with later on, maybe. I did remember that it's OK to take care of myself... to be able to provide care... but the opportunities for downtime were pretty scarce.

None of us have talked about the fact that a month after radiation effectively shrank the one tumor that caused her voice to fade away to a hoarse whisper... that she developed a recurrance in the lung that was partially removed and in the other previously healthy one. We seem to be operating in a parallel universe of denial that this maintenance drug will somehow "cure" the cancer and that she's going to live forever. Each of us, in our own way. If anything, MIL is the one most in touch with the reality that she's not going to "get well" and I expect she's going to start directing the rest of us, with more urgency soon. She has some things on her to-do list that she wants to oversee - even if it at a distance - and while this new drug buys her some time to do that, the rest of the family has to understand that none of us knows exactly how much time that is. I'm hoping to delegate bringing this message to the sibs to hubby - 'coz I just don't feel comfortable being the one to say this and asking them to step up to the plate and help out with what their mom wants.
-----------------------------------

Hops & Lighter - thank you. The inner "twit" is being good right now... and is trying help out. She's the one with the sword & the horse who thinks she's invincible - even after all we've been through. We've been giggling over the fantasy of MIL & her 92 yr old best friend racing walkers up and down our long hallway. And also letting the pressure escape through drippy eyes... and she's finally hearing me say that it's OK to cry even when you don't know what you're crying about or who's around. That's a freedom she wasn't allowed - would've made mom look bad, you know? Why is that kid crying all the time? Silently?
Success is never final, failure is never fatal.

Hopalong

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Re: Deconstructing Self-Abuse Patterns
« Reply #24 on: November 05, 2010, 10:31:15 AM »
Oh, boy. You are really steering into the storm but like a confident sailor who knows your boat.
I know you'll get through this and be okay, Amber, but ... wow.

Fwiw, I really did NOT know what a toll it would take. My eldercare lasted 10 years. It ended
two years ago and I am still trying to rebuild my health. The logistics of finding, arranging, scheduling, paying for a few hours of help were daunting too.

I applaud your pro-active thinking about this and urge you to press on the accelerator with a plan for daily assistance.
It's really important it not fall only on you, or even you and hubby. Imo, anyway.

As awkward as may be emotionally for you both, your MIL can accept paid help, not just
yours. And in a way, a few hours/day of a kind person who'd like some hourly income
and can serve as an "outside" presence for her can be a relief to her too. My mother
benefitted a great deal from my main helper (who happened to be a smart, competent,
enormously decent person). They had their own bond. And psychologically, it kept her in
the world to have some interaction with NON-family, too.

Have you talked to Hospice? Getting a jump on this--even without discussing it with MIL yet--
would be extremely helpful to you. If there's no formal Hospice program there, there is likely
a villagey network of people who know part-time nurses or such who know how to tend those
at the close of life.

The thing I was always stunned by was that nobody ever really talked about the physicality
of elder caregiving. I finally told a friend it was like having (in her case) a 160 pound two-year-old
who kept regressing. By the time she couldn't manage her own safety (walking safely, getting
up and down)...the toll on my back was permanent. It was an arduous physical marathon and
had I known how crushing the stress would become I would have made a better plan.

But I was so involved emotionally in doing a good job, helping, being a good daughter, being
focused on her emotional and physical well-being that I lacked the detached view of the situation.

Now, from hindsight, I can only urge you to let your warrior off her horse and remember that
this is never, ever going to be perfect. It's already good because of where your heart is, and it's
hard because she's losing life and you're losing her. But it's good. You will look back one day and
know you have done such an honorable thing.

Just don't do it by yourself. Awkwardness is okay but having a permanently damaged back or
adrenal exhaustion is not.

I so so so hope there is Hospice there. They are wonder workers. Yet even with their help, you
will still need practical support.

Time to line up a team. A schedule. MIL will understand it's for her good.

You are SO smart to recognize she's over-medicated. It amazes me how seldom doctors make
thoughtful reviews of Rx and put them in perspective.

I hope she regains enough appetite to just enjoy whatever tastes bring her pleasure.

xo
Hops
"That'll do, pig, that'll do."

lighter

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Re: Deconstructing Self-Abuse Patterns
« Reply #25 on: November 05, 2010, 12:04:29 PM »
Awwww, Amber.

The inner twig's crying bc she has tears to shed.  I hope she can do it out loud, and have done with.

About your beloved, sensitive, caring, independant MIL.....

I love that you're mindfully invested in sustaining her privacy, and dignity.

Somehow, I don't think anything else you do, could help as much.

What a nice nice lady..... I'm so glad you have each other.

I'm with Hops regarding Hospice.  I wish I'd called them in sooner when someone I love passed with cancer.

If the docs try to give MIL a drug for nausea, beware.  It causes constipation, which leads to more drugs and so it goes.

Sitting down with the doc who seems most invested, and going over meds, is very wise.

I remember there were drugs prescribed that would have been deadly given in tandem, had the Pharmacist not caught it.

Time to go over all of them with a fine tooth combe.

Rest.

Make a good plan.

Let hubby deal with his family, you have enough on your own plate, as you know.

Help your MIL take care of her to-do list.

Let her know how much you love her.

It'll be OK.

Whether your mounted on your horse, in full battle gear, or snuggled in cotton with MIL close by the fire.

Lighter




sKePTiKal

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Re: Deconstructing Self-Abuse Patterns
« Reply #26 on: November 05, 2010, 06:34:24 PM »
Saw her GP for another coumadin test today. It's getting closer to normal... but we can't be sure what kicked it out of whack. One of the side effects of her cancer drug, is a rash which is a good thing - indicates the drug is working. But it kind got out of hand, and I'm seeing other signs of autoimmune hyperactivity. That doc put her on tetracycline, to relieve the itch. So, GP says we'd better cut down to 1 t'cycline a day until Wed, when we see the cancer doc again. And get his take on what caused the surge in coumadin toxicity... and what to do next. He said it could be the cancer drug or the antibiotic causing her nausea and not feeling able to eat. They - and the hospital - are all located in the same building and have access to the same med records and know each other.

I have to say - compared to the medical system where we used to live - things here in OBX are way better. Patients are treated like real people; no one's diss'd me in my role as caretaker (and advocate); in fact they've been real supportive and helpful. That in itself is a huge relief. Hubs & I have decided we'll wait until we see the cancer doc next week before talking to the rest of the sibs. She seems to be caught between a rock & hard place - the drug needed to counter cancer possibly causing the no eating (which is the worst thing she can do with the palette of pills she takes every day). We know it's possible they could have her not take the cancer drug for a week, then restart... and perhaps the dosage could be adjusted... and then all will "right" itself....................

until the NEXT thing goes wrong. So I hear you about Hospice. Yes, there is a group here. And also a cancer support center - for patients and caretakers alike. I have that info, so don't have to look far. Hubby and I talked after getting back. I think that unless they can solve this autoimmune over-reaction... she's basically looking at end of life. Not to put too fine a point on it - the Twigs on the horse knows that this is the "end of story" for MIL... and that it's just a matter of time the amount of which no one can predict. I saw this with my Dad, too. Increased frequency of pneumonia was a sign I couldn't ignore.

SIGH - SO. This incident happened to occur while I was recovering from a nasty cold and Hubs was in the throws of it. Absolutely only essential things have been getting done around here. Yeah, I'll be better in another week - but I still can't physically do all this, because I haven't had the training. My 5'2" DIL is a trauma flight nurse (helicopters) - and she knows how and she still complains about her back hurting. Clint Eastwood's - "A man's gotta know his limitations" - is one of my mantras.

It's the LETTING GO that's the hardest; of being the "responsible one"; of "helping"; "fixing things"... gee, don't that sound familiar?
So, I'll breathe my way into another day... and see what news that day brings. I kinda hoped we'd have a couple of years to go do things she wanted to do... have her show me her home stomping grounds. But my other mantra is: you can't always get what you want; but sometimes you [still] get what you need.

Thankfully, all of the sibs care a great deal for Mom and only want what is best for her. My fingers are crossed that this will carry everyone through some the difficult times that are still out there, to be dealt with. I keep remembering something my T said about my dad - that sometimes people just decide that they're ready to die and what anyone else wants or thinks is a violation of a major boundary. I think I got that; hope I can walk it. I was able to talk to MIL today about what I was worried about; what I hoped the docs could tell us; that I'm trying to "fix" her leg so it won't hurt anymore... and why I was worried about her not eating. I think she's now looking for a way to tell me to let go.... but I'll keep listening. She's not shy. And she knows she doesn't need to tiptoe around me.
Success is never final, failure is never fatal.

CB123

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Re: Deconstructing Self-Abuse Patterns
« Reply #27 on: November 06, 2010, 09:02:34 AM »
Hi PR,

You might also look into a geriatric specialist.  Even a consult might help even out the situation....they specialize in the very issues you are writing about, much more than a GP does.  They specifically LOOK for drug interactions and over medication and find ways to make them work together better.  They also deal with the balance of independence/dependence in older patients.

I think Hops is right--a team is what you you need and maybe that speciality will be an important part of the team.

Good luck.

CB
When they are older and telling their own children about their grandmother, they will be able to say that she stood in the storm, and when the wind did not blow her way -- and it surely has not -- she adjusted her sails.  Elizabeth Edwards 2010

sKePTiKal

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Re: Deconstructing Self-Abuse Patterns
« Reply #28 on: November 06, 2010, 09:42:18 AM »
Yep, I wish there were such a specialist here CB.

There are doctors and nurses in hubby's family. I've been able to bounce things off of them, as I go through my troubleshooting mental routines - for what I might be missing, not know about, or even simple validation. I have a close friend who's worked in nursing homes for years and has a lot of practical experience. And the doctors & hospital here do work in that team cooperation technique, I'm happy to say. And I've done a lot project mgmt, so I know how to coordinate all these resources.

And even with all of that on the positive side, I'm willing to say that there might be a better way than my cobbled together, DIY approach.

I think why I'm posting about this here, is that the experience touches a lot of different places in my collection of "issues" about moms: my attachment issues, over-responsibility<->guilt, the disconnect between thinking and feeling (and the healing of that disconnect) and that letting go I mentioned last night. And it also touches on the self-destructive instincts I have - the "throw myself under the bus" phenomenon. There's been a sort of an earthquake in that... a radical change that I can't quite see yet.

In this situation, there are some very clear boundaries that I'm aware of. In the past, I would completely disregard those in my charge to ride to the rescue... then of course, feel horrible about how I'd screwed up. Myself, I would never even comtemplate asking for help in rescue - until I was incapacitated and needed as much help. I'm not doing that now. I went & dealt with the crisis - then stopped to take care of myself.

There is way more that is changed about that response than I have time, right now, to think about. And in some way I can't see - only feel - I know it's directly connected to, if not responsible for that self-destructive reaction, reflex or instinct.
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lighter

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Re: Deconstructing Self-Abuse Patterns
« Reply #29 on: November 06, 2010, 04:51:38 PM »
Amber:

Having some experience with your situation, I want to say.....

it might be time stop the cancer drugs, and let your MIL enjoy the rest of her days to the best of her ability.

If she can eat and take care of her to do list.... her last days could be more comfortable.

I know my Bill wished he'd skipped the chemo.  It added more discomfort and symptoms..... fear.

Acceptance might be something your MIL's come to grips with.

Your coming to grips will help her too.

Not saying this is the case, just sharing what I learned when I went through this.

At the time, there was nothing that could have stopped me advocating for every available treatment or trial, be it Eastern or Western.

Looking back, I wished we'd have skipped the chemo too.
Lighter