Author Topic: Update from.....Izzy  (Read 56502 times)

Hopalong

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Re: Update from.....Izzy
« Reply #105 on: August 29, 2013, 08:16:28 AM »
Ohh, Izz.
Please don't disappear.
You matter.

I'm PMing you,

much love--
Hops
"That'll do, pig, that'll do."

Hopalong

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Re: Update from.....Izzy
« Reply #106 on: August 29, 2013, 01:44:33 PM »
You are one of the bravest women I have ever known in my life.
You have taught me so much.

Thank you for every single thing you've shared, the good, bad,
and just the...fabulous, unforgettable Izzy.

And I am hoping that you'll get that transfusion very very
quickly and be back reporting a surge of energy...

with much love,
Hops
"That'll do, pig, that'll do."

lighter

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Re: Update from.....Izzy
« Reply #107 on: September 03, 2013, 09:42:04 PM »
Izzy:

I'm so sorry.

It's so unfair.....

no respite for dear Izzy.

I'm hoping the docs have it wrong.

Again.

Lighter


Dr. Richard Grossman

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Re: Update from.....Izzy
« Reply #108 on: September 03, 2013, 10:09:08 PM »
Hi Izzy,

I’m so sorry to hear about your current condition.  You have been through so much.  I hope you can find some help and stay with us.   People care a lot about you here.

Best wishes,

Richard 

Izzy_*now*

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Re: Update from.....Izzy
« Reply #109 on: September 03, 2013, 10:26:55 PM »
Thank you Hops and lighter

-----and on it went, so today I went back to the hospital again. Something had to be done!!! and was again sent home with no answers. There was a nice doctor in Trauma Emergency. Tony.

I was barely home and on my computer when he called. He had an answer for me--Polymyalgic Rheumatica--and would telephone a Rx to Drug Store for me. I now have it and took my first. Will take 7 and report to my regular no Dr. Dr., next Monday.

All the symptoms etc. fit exactly.  ♥Tony♥ looked it up and called me right after I left. My first symptoms were in January, 2013

With the first symptoms, headache and eye aches, I went for my eye check. I was okay but Dr. Prescott said to go to my Dr. and be checked for Giant Cell Arteritis. It is an almost equivalent of Polymyalgic Rheumatica, yet the full set of symptoms hadn't erupted quite yet. My Dr. Dr. say I didn't have G.Cell A and sent me home with my tail between my legs. I wonder, if this works out to be PR, if he'll remember? As well "bone marrow failure" cannot be diagnosed without first taking some bone marrow and testing it---Damn! I should have caught that!

So 1 pill down and 6 to go!! The Mayo Clinic has a good write up, if you Google PR.

(All I have to do is tell someone something, and it turns into an exaggeration----in this case, I hope so for the first diagnosis and not for this new possibility.)

Love
Izzy

Thank you Dr. Grossman

I appreciate your kind words and good wishes. I really do!

Izzy
"The joy of love lasts such a short time, but the pain of love lasts one's whole life"

Meh

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Re: Update from.....Izzy
« Reply #110 on: September 03, 2013, 11:06:33 PM »
well as bad as it is to have any kind of health problem, I guess it's good to be able to define it now

Twoapenny

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Re: Update from.....Izzy
« Reply #111 on: September 04, 2013, 03:23:04 AM »
Thank you Hops and lighter

-----and on it went, so today I went back to the hospital again. Something had to be done!!! and was again sent home with no answers. There was a nice doctor in Trauma Emergency. Tony.

I was barely home and on my computer when he called. He had an answer for me--Polymyalgic Rheumatica--and would telephone a Rx to Drug Store for me. I now have it and took my first. Will take 7 and report to my regular no Dr. Dr., next Monday.

All the symptoms etc. fit exactly.  ♥Tony♥ looked it up and called me right after I left. My first symptoms were in January, 2013

With the first symptoms, headache and eye aches, I went for my eye check. I was okay but Dr. Prescott said to go to my Dr. and be checked for Giant Cell Arteritis. It is an almost equivalent of Polymyalgic Rheumatica, yet the full set of symptoms hadn't erupted quite yet. My Dr. Dr. say I didn't have G.Cell A and sent me home with my tail between my legs. I wonder, if this works out to be PR, if he'll remember? As well "bone marrow failure" cannot be diagnosed without first taking some bone marrow and testing it---Damn! I should have caught that!

So 1 pill down and 6 to go!! The Mayo Clinic has a good write up, if you Google PR.

(All I have to do is tell someone something, and it turns into an exaggeration----in this case, I hope so for the first diagnosis and not for this new possibility.)

Love
Izzy

Thank you Dr. Grossman

I appreciate your kind words and good wishes. I really do!

Izzy

Hi Izzy, I'm really glad that they have found some answers for you and hope that these meds help.  Hope that you're feeling better soon xx

Hopalong

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Re: Update from.....Izzy
« Reply #112 on: September 04, 2013, 08:10:27 AM »
Whew. I read this: http://www.mayoclinic.com/health/polymyalgia-rheumatica/DS00441/DSECTION=treatments-and-drugs.
It makes so much sense. You've been talking about your shoulder/s for a long time.

Jeez. I hate that you have a new source of pain.
I love that it sounds treatable.
I love that you have an ANSWER, because a diagnosis is a relief. (I hope.)
Many hopes that your docs whack it with all the right stuff and in the right timing
and that you feel relief very soon.

(Then we can go back to sticking you in closets and stuff, to manage the other
pain...)

Also a huge relief that you may not have a bone marrow problem.

WHEW!

Izzy, I have learned more about pain from reading your posts over the years
than from almost anyone I know. Your journey has been awful but also a deep
reminder of how much we take for granted when our lhysical lives are not as challenging
as yours has been.

I just met a writer who writes scholarly books about pain. I thought of you
when I read some of the summaries.

Makes sense to me that at VESMB, where we talk a lot about emotional pain,
one voice is here to show us how arduous it is to deal with the literal pain
of the body. Your pain is from accidents as well as early severe abuse...
and listening to you has taught me a lot that I can't articulate well.

I just know that it doesn't matter to me exactly how a person thinks,
if I'm in their vicinity and they're suffering pain...I wish I could relieve it.

love to you, and soooooooooooo glad for this update...keep them coming!

Hops
"That'll do, pig, that'll do."

Izzy_*now*

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Re: Update from.....Izzy
« Reply #113 on: September 04, 2013, 03:16:39 PM »
Thanks Green Bean, Twoapenny, Hops again and everyone---

So , no moustache, yet!

The best way to know about the diagnosis is the patient’s reaction to the medication.

Dead On!

One pill last night, no pain, up once for bathroom--no problem--- awoke at 9:00 a,m.

Could reach up to the cupboard for a clean plate (been using the same one for 9 months [[[[hahaha]]]]

Could take a year to be over it, but a relapse could happen in 10 years. Well I might be living on Mars in 10 years, too!

Love to all
Izzy ♥ ♥ ♥ !♥
"The joy of love lasts such a short time, but the pain of love lasts one's whole life"

lighter

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Re: Update from.....Izzy
« Reply #114 on: September 05, 2013, 08:32:10 AM »
Izzy:

I'm relieved that this new doctor seems to be competent, and on point.

That's HUGE all by itself.

((((Izz)))))

Light

Twoapenny

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Re: Update from.....Izzy
« Reply #115 on: September 07, 2013, 04:21:34 PM »
Thanks Green Bean, Twoapenny, Hops again and everyone---

So , no moustache, yet!

The best way to know about the diagnosis is the patient’s reaction to the medication.

Dead On!

One pill last night, no pain, up once for bathroom--no problem--- awoke at 9:00 a,m.

Could reach up to the cupboard for a clean plate (been using the same one for 9 months [[[[hahaha]]]]

Could take a year to be over it, but a relapse could happen in 10 years. Well I might be living on Mars in 10 years, too!

Love to all
Izzy ♥ ♥ ♥ !♥


This has put the hugest smile on my face :)  I am so, so happy for you :) :) :) xx

Izzy_*now*

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Re: Update from.....Izzy
« Reply #116 on: September 08, 2013, 11:28:11 AM »
Thank you tt, lighter and twoapenny

I appreciate the variety of messages. This is day 6, pill 6, and tomorrow I check in with old Dr. I feel quite fine with an odd snag or two but am managing well. I chose to keep a daily record, so I could be accurate.

I contacted  my ex-lawyer and asked him if this would have affected my claim.  He said definitely, because the Doctors' reports were filled with notions of my shoulder rotator cuffs giving out next year and into a Home, not moving myself at all well....just as this condition had affected me. We discussed overlapping symptoms. Interesting!

I can throw back the covers, flip into the chair, fix my coffee and read my mail, "bim, bam, boom", without grunting and being exhausted. My transfers are more solid/safe.

More later when I begin mountain climbing!

Love
Izzy
"The joy of love lasts such a short time, but the pain of love lasts one's whole life"

lighter

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Re: Update from.....Izzy
« Reply #117 on: September 10, 2013, 05:52:27 PM »
Thank you tt, lighter and twoapenny

 I feel quite fine with an odd snag or two but am managing well. I chose to keep a daily record, so I could be accurate.

Love
Izzy


Izz: Of course you're documenting with a daily record. So Izzy! 

Glad to hear you're feeling better.  Don't forget to check your sources before believing everything an asshat doc has to say.

Light

Izzy_*now*

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Re: Update from.....Izzy
« Reply #118 on: September 11, 2013, 11:22:06 AM »
hi lighter.

I just saw Dr. Why? (Yarrow) and have different Rx layout, 45mg (daily), 40 daily, 35 daily and 25 daily for the 4 weeks then back to see him.

His statement of hemoglobin, (my reading of 85 that ought to be 129?) was off from what I learned later (there are different types of numbers on the internet) but Dr. Kwan said 90 was a fine number and my sister said that 90 was fine when she was in cancer treatment---

I feel SO much better, but am keeping Ellen on and semi retiring from housework! I'm using my settlement on me, by paying others to make my life a safer and more comfortable one, plus I now have 2 near-daughters.

Thanks for the thoughts
xx
"The joy of love lasts such a short time, but the pain of love lasts one's whole life"

lighter

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Re: Update from.....Izzy
« Reply #119 on: September 11, 2013, 11:28:22 AM »
Oh, Izz:

If anyone deserves a little help it's you.

I'm happy to read you're hiring people to make your life more comfortable. It's time for things to get a bit easier.

Enjoy your new found chosen family, and keep us updated: )

Lighter