Author Topic: Update from.....Izzy  (Read 56525 times)

Hopalong

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Re: Update from.....Izzy
« Reply #165 on: April 18, 2014, 07:40:38 AM »
Izzy, this breaks my heart.
Of all the people who have taken care of you in the last months,
which person or institution is responsible for the neglect of your wound?

I have trouble keeping track. Was it the horrid nursing home that let this happen?

Hops
"That'll do, pig, that'll do."

lighter

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Re: Update from.....Izzy
« Reply #166 on: April 18, 2014, 09:55:44 AM »
::hand over mouth.... horrified too::

Oh, Izz.....

I'm so sorry.  Is it just a basic lack in Canadian healthcare, or is it bad luck, or that your situation has been overlooked, minimized, and consistently underestimated since you were hit by the car?

I think some of each?

I think accountability would have been a good thing, though it seems there are no consequences, in any case?  In Canada? 

::sending your leg, and spirit, healing pink light::

You continue to be one of my heroes, Izz.

Light




Twoapenny

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Re: Update from.....Izzy
« Reply #167 on: April 18, 2014, 11:31:33 AM »
Wow! 2½ months since I wrote.

There are 7 wounds on my left leg. I have been "horrified" with whatever in me horrifies me, but must always look for the best.

When the first Home Care nurse came, she opened the brace and dressings while Karla was here, who said "Oh F___!" and Cathie, the nurse said "This is disgraceful!"

I can now look at that leg, as it has taken me this long to be able to, and ....yes! Horrified. It will take about a year to be somewhere normal. Once a day with 2 nurses to attend, turned into 4 times in 6 weeks. I had no idea this was breaking down my skin---too much lamb's wool to be able to see.......

I was home before I knew the mess and it is finally cleaned up enough to see 6 sores around the top of my ankle (base of the brace moving up and down), and the knee the same from a strap that was too tight for compromised skin.

Nurses came here for a while and worked around the brace, then around no brace, as I accustomed myself to moving with support, then no support but my own and began going into the clinic.....yep about 1 year more. The whole negligence case has been reported to the higher up in this area!

I now have a power chair and haven't totalled it or killed anyone! (Today was my second trip with it, to the Clinic.) Will use it for going to lunch with Karla tomorrow. I plan on keeping both chairs in action, so my arms don't lose their strength.

This is the worst struggle, as I am older now, but am managing.

Love to all.

Tale Care.
Izzy

Oh Izzie.  I'm glad to see you writing again but my gosh, what in the world??!!  All I can offer you is a great big cyber hug  ((((((((((((((((((((((((((((Izzie The Great))))))))))))))))))))))))))

Izzy_*now*

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Re: Update from.....Izzy
« Reply #168 on: April 18, 2014, 04:10:34 PM »
Hi Hops,

To tell it like it is, I have to mention the paralysis of 1969, as that was when my legs, particularly my lower legs began with poor circulation because of the paralysis. I had no problems for 40 years being diligent in skin care, etc. and no pain (from the accident), but my legs kept on demineralizing.

Then 5 years ago, 2009, that car backed out and hit me, breaking an upper leg bone, bringing on excruciating pain (femur, hip end) That’s when I was so drugged, that I was treated for Tourette’s Syndrome and Schizophrenia. I read these on the reports in the spring of 2012 and the case was settled in 2013. So for 44½ years I was still in fairly good shape even “without a left hip’, with the pain lessening, to next to nothing when the Polymyagia Rheumatica set in and caused weakness then pain in my arms and I am on prednisone. I learned that that drug can weaken the bones. I was already in “enough trouble“. I was left with worse balance, now having no hip and any one of my falls could have broken something, and suddenly one did, Dec 18, 2013.

No surgery, for bone condition so a knee brace was recommended and I had never known of such a thing. It was heavy plastic, material  and Velcro, with a circular security piece placed at either side of the knee, but was prone to sliding with movement (as it was not held up by a rope around my neck, for instance.) The rules posted for the nurses was that my leg was to be tended to daily (and I didn’t figure out why except that would be when it was washed for me.) It was also to keep an eye on my skin, adjust the slippage etc. This was NOT done! Some nurses never saw that brace before and “were afraid” and refused to touch it. One said it wasn’t in his Union Contract. When Karla visited one day she saw how those “circles” were too low, and undid the straps to find the beginning of a wound at my ankle, from the bottom of the brace being too low. The brace had to be undone, my broken leg lifted out, washed, the stockinet changed, brace adjusted and re-strapped in a special order of the 5 straps.

I don’t know how much responsibility I bear, but would have been more aware if they tended to me daily (after 2 weeks I wore the original stockinet to Cottonwoods…..run by hospital... and I had only one change of stockinet while in Cottonwoods, plus I was aware of the pain and the broken bone and how was this strange brace working? So 2 weeks of very few ministrations, while the compromised skin on my lower leg rested on this hard plastic and, feeling nothing, it broke down a little more each day while I know now for a fact it was never removed from the brace, nor the skin underneath ever checked. Cottonwoods for 4 more weeks--"short term stay" until it is felt the patient can go home. 4 checks in those four weeks and all I could see was the one on my inner ankle.

Arrangements were set up for Home Care and the first nurse, Cathie, remarked immediately how this ought to never have happened and told me about the sores in which areas. She took pictures and wrote up a report for some “tops dogs!  I had Home Care until I was rid of the brace but not healed at 2 months, and only able to go to the clinic myself when I felt safe without the cast and an only partially healed bone. (I still hold my knee in place as my lower leg is moved to get to all the sores.

The schizophrenia is still on my chart, as I was asked by a nurse this past Monday. She almost didn’t ask, she said, because she felt it wasn’t true. I asked if this would be following me around and I forget if she had said she would follow it up….how can records be changed, when the attending doctor has left the area? I saw him only once and did not know what was on my reports!

Onward to reply to lighter

Xx
Izzy

"The joy of love lasts such a short time, but the pain of love lasts one's whole life"

Izzy_*now*

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Re: Update from.....Izzy
« Reply #169 on: April 18, 2014, 04:12:31 PM »
Hi lighter.

For all my hospitalizations, I found this last, at the Hospital and their spin-off, Cottonwoods, that at both places I heard it mentioned about being short-staffed. For the most part I have to say that I haven’t heard complaints about our Health system. Perhaps one must be a “test case” to really know? I need to hear/see more stories.

All the nurses from Interior Health, who came here and now I go to them (shows much improvement on my part) are very diligent and friendly. I am now able to sit up and turn my body and leg, so I can see the back of it. I watch what they do and I stop them to ask questions, which brings out a reason for the change, or for the nurse to double-check about what she has done, or might do. They have all said that these will heal, but the year to do it? What a great vacation!

Thanks for the healing light. My leg thanks you, but sometimes I want to give it to someone else to care for, while I go party a bit! I put my hands, one on either side, on my knee and hold it steady while I’m being tended to. Karla was doing my nail care with my foot on her lap and my holding my knee. She mentioned a black spot on the back of one toe…. Hmm! I started to hand her my leg and say “Here you hold this while I get a mirror.” I laughed first then told her what I almost said!  (Is that like I have disowned it? Or just looking after it for someone else?)

Oh! Poop! I put pepper in the salt shaker and the pepper shaker was still empty. Sitting down all the time---try it for a day and see what you miss!

My doctor, with whom I had a down to earth talk, and I are on much better terms with his coming to see my in these places. I explained to him my thoughts, and he agreed that he was guilty of it too-----that I am talked to as though I were 50, not almost 75. I believe I’m being treated as a much younger person who knows about things, is independent and doesn’t require help. Not so: only partially true.

I suppose I could sue but that is just more stress for what? What is done is done (so far.) I am spending my $$, but still have an income, and in over a year from the settlement, am at about the same amount, as though I spent nothing, for just over that year. This chair will knock me down by about $7,000, but I just learned that Part 7 of our Insurance Corporation, from my other lawsuit is sitting with $25,000 for me, for rehabilitation (wheelchair) and living conditions (going to a home earlier than expected: 5 years.)

So much stuff crammed into my head, that I sometimes cannot think.

Later
Izzy
"The joy of love lasts such a short time, but the pain of love lasts one's whole life"

Hopalong

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Re: Update from.....Izzy
« Reply #170 on: April 18, 2014, 10:15:43 PM »
(((((((((((Izz))))))))))))

You have shared your suffering here with such openness and care,
and you have allowed us to be present with you. It is a gift to us.

Your body has been my friend as much as your dogged heart.
You have taught me so much about being alive, Izz. Your body
has reminded me over and over of the beauty in brokenness,
the vulnerability in every mother's heart, the magnificence of
laughter, and best of all...your deep acceptance of absurdity
helps me breathe, breathe, in my easy lucky body--

Partly because this brave and remarkable friend in Canada
keeps being open, keeps trying, keeps rolling in the deep.

with love to you,
Hops
"That'll do, pig, that'll do."

Meh

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Re: Update from.....Izzy
« Reply #171 on: April 19, 2014, 12:37:10 AM »
Hideho Izzle fizzle

Fuccking sucks. Being physically unwell is the pits. Sorry to hear about that.

Sheesh Izzy, you sound like you have more clarity than I do.

Well all we can do is take life one day at a time or moment by moment. Hope that you start to feel a little bit better somehow even if it is slow.

Some weeks and days I feel better other times I feel down.. never know what is going to happen.

I am convinced that with nursing and health case as with all other businesses the staff quality varies greatly depending on the organization doing the hiring.

......  "Once a day with 2 nurses to attend, turned into 4 times in 6 weeks".... This just isn't right, this is really bad.
« Last Edit: April 19, 2014, 01:09:36 AM by Garbanzo »

Izzy_*now*

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Re: Update from.....Izzy
« Reply #172 on: April 19, 2014, 12:23:46 PM »
(((((((((((((((((((  HUGS   ))))))))))))))))))))))))

Twopenny
and
Garbanzo
and
Hops,
Thanks again.

This is a great friendly place to be when one just has to let it all out!!
Love
Izzy
"The joy of love lasts such a short time, but the pain of love lasts one's whole life"

Meh

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Re: Update from.....Izzy
« Reply #173 on: April 21, 2014, 01:27:26 AM »
:)

lighter

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Re: Update from.....Izzy
« Reply #174 on: April 21, 2014, 09:41:06 AM »
Izzy:

I wish your health could settle down, again, and release you back to happier interests.

There are times I really miss your posts on music, and visiting around your neighborhood on errands, and.......

just hearing about the life you had before this last accident.

Honestly, it's like you've been harmed by the cars AND then your family's lack of support and care, again by the asshat dotors, and then again by the Insurance racket, and then again by the nursing care.

And up to the first accident, it was your family doing harm.

::shaking head::

You're the strongest person I know, Izz.

Lighter




Izzy_*now*

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Re: Update from.....Izzy
« Reply #175 on: June 01, 2014, 05:57:45 AM »
Hello All again,

Insomnia to boot---2:49 a.m. June 1

Nothing is very exciting in my life now. Nothing makes me jump up and down for happy or makes me cry for sad, because my emotions left me long ago and all I am left with in that regard is to follow the gals on the
http://www.voicelessness.com/disc3//index.php?topic=10280.0  thread who express themselves far better than I can.

All I am doing is crocheting a pair of slippers so my feet will match when I go out to the Wound Clinic.

Out of 7 days a week, I spend the 5 work days (as normally known) Mon & Thurs going to Wound Care Clinic. I am home the other  three for one with Ellen and Housework, etc. and two with Kara and Therapy. The weekends are  for me alone to do nothing until my new w’chair arrives in town. Everyone makes mistakes so I won’t call out the salesman, who receives a commission from my buying from him, while taking him at his word, only to find out he is a typical salesman and his 3 weeks has turned into 5 weeks and counting!

The seven wounds are now classified as three, as four can be dealt with and covered with the same Misorb (a pad that collects drainage.) The others are the heel and the knee = THREE Misorb pads. I see good shrinkage in 2/7 , but I also see a nasty knee that I thought was only superficial, and it was the first, but eating deeper into my skin, while I hope it won’t reach the bone. (If I dared, I would pull off the ’scab’ in case it is holding in bacteria, but no nurse will  Usually they want the top to soften and drop before this, but not this sore.)

Now that it’s June, it is just a year ago that my arms began to bother me and I hired Ellen, then more crap, and now may arms are bothering me again so I am seldom out of the apartment----but that makes no never mind to the wheelchair business, not even when I told the salesman I didn’t require a “prescription chair”, that I knew what I needed after 45 years. Nevertheless the production end was awaiting a prescription from him, for 2 weeks, re the seating on the chair. No point in screaming, when 2 weeks past the delivery date, I  learn the reason for delay, and ask the salesman if he never knew that some chairs are bought without a prescription?----after all I went there, ordered what I wanted and paid for it! (A prescription chair require an Occupational Therapist to accompany a client and state what is needed and lets the business know who is paying!)

This past Wednesday I began to have dizzy spells, a slight feeling of nauseas, and that Thump of Anxiety in my gut, but my 5 week days are filled and I need a doctor, a dentist and an eye specialist. Now I need the battery chair to get me to them or the strength to wheel manually with painful arms to get there: i.e. people do more than one thing in a day, but at my age, I am lucky to wake up.

There is always a first time to be ineffective!

Thank Heaven that Ellen and Karla are great gals, and that every Wound Care nurse thinks I am a comical 55 year old and enjoys my company each time.

Happy Days, everyone
XX
Izzy
"The joy of love lasts such a short time, but the pain of love lasts one's whole life"

Twoapenny

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Re: Update from.....Izzy
« Reply #176 on: June 01, 2014, 10:17:15 AM »
Hello All again,

Insomnia to boot---2:49 a.m. June 1

Nothing is very exciting in my life now. Nothing makes me jump up and down for happy or makes me cry for sad, because my emotions left me long ago and all I am left with in that regard is to follow the gals on the
http://www.voicelessness.com/disc3//index.php?topic=10280.0  thread who express themselves far better than I can.

All I am doing is crocheting a pair of slippers so my feet will match when I go out to the Wound Clinic.

Out of 7 days a week, I spend the 5 work days (as normally known) Mon & Thurs going to Wound Care Clinic. I am home the other  three for one with Ellen and Housework, etc. and two with Kara and Therapy. The weekends are  for me alone to do nothing until my new w’chair arrives in town. Everyone makes mistakes so I won’t call out the salesman, who receives a commission from my buying from him, while taking him at his word, only to find out he is a typical salesman and his 3 weeks has turned into 5 weeks and counting!

The seven wounds are now classified as three, as four can be dealt with and covered with the same Misorb (a pad that collects drainage.) The others are the heel and the knee = THREE Misorb pads. I see good shrinkage in 2/7 , but I also see a nasty knee that I thought was only superficial, and it was the first, but eating deeper into my skin, while I hope it won’t reach the bone. (If I dared, I would pull off the ’scab’ in case it is holding in bacteria, but no nurse will  Usually they want the top to soften and drop before this, but not this sore.)

Now that it’s June, it is just a year ago that my arms began to bother me and I hired Ellen, then more crap, and now may arms are bothering me again so I am seldom out of the apartment----but that makes no never mind to the wheelchair business, not even when I told the salesman I didn’t require a “prescription chair”, that I knew what I needed after 45 years. Nevertheless the production end was awaiting a prescription from him, for 2 weeks, re the seating on the chair. No point in screaming, when 2 weeks past the delivery date, I  learn the reason for delay, and ask the salesman if he never knew that some chairs are bought without a prescription?----after all I went there, ordered what I wanted and paid for it! (A prescription chair require an Occupational Therapist to accompany a client and state what is needed and lets the business know who is paying!)

This past Wednesday I began to have dizzy spells, a slight feeling of nauseas, and that Thump of Anxiety in my gut, but my 5 week days are filled and I need a doctor, a dentist and an eye specialist. Now I need the battery chair to get me to them or the strength to wheel manually with painful arms to get there: i.e. people do more than one thing in a day, but at my age, I am lucky to wake up.

There is always a first time to be ineffective!

Thank Heaven that Ellen and Karla are great gals, and that every Wound Care nurse thinks I am a comical 55 year old and enjoys my company each time.

Happy Days, everyone
XX
Izzy

Iz your spirit amazes me.  I hope those wounds continue to heal and that your wheelchair arrives soon!  Glad that you have Ellen and Karla there for you.  Hope you get some sleep!  And good luck with the crotchet, not something I've ever been able to manage! xx

Hopalong

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Re: Update from.....Izzy
« Reply #177 on: June 01, 2014, 11:10:19 AM »
Izz, Izz...

Does music help?
What about movies?

Can you find stuff so great you get swept away?
(I am a master, or mistress, of escape...)

Currently watching on Netflix a series called Longmire, set in Wyoming.
For some reason I am captivated.

You deserve to be captivated by something other than pain.

love to you,
Hops
"That'll do, pig, that'll do."

lighter

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Re: Update from.....Izzy
« Reply #178 on: June 01, 2014, 04:34:28 PM »
Ahhhh, Izzy:

You are funny, and sharp, and ironic.

You enjoy interacting, and understand when people are enjoying you.

You can enjoy them.

How can you make more connections that feel......

better?

I miss your stories.

You used to get out to the store and talk about this guy and that guy, and the banter, and their opinions, and.....

I just miss that. 

For you, and from you.

Lighter

Izzy_*now*

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Re: Update from.....Izzy
« Reply #179 on: June 16, 2014, 07:15:43 PM »
Hi everyone,

The Community Ambulatory Care clinic first came here, beginning January 29, 2 days out of Cottonwoods, as it was winter and cold, and I was still not healed and in the brace....and now I'm still attending there, with my taxi fare paid.

Out of seven sores I have two 'worser' ones to be healed and that could be a while.

On June 2, I called for an ambulance as I was gasping (slowly?) for breath....and dizzy, thought it was my heart. They came and put me on oxygen, then to the hospital for 2 nights and 3 days. I had a 4 hour gasping for breath attack the second night then it calmed down. I had 4 types of IV antibiotics and was given an Rx for oral antibiotics, and pretty well cleared up. Was told it was pneumonia. Was it?

Now I am still short of breath and still dizzy (dizzy...so what else is new, rhymes with Izzy). It puffs me out to propel this chair and after nag, nag, nagging, then finally seeing the salesman today, I am told that my battery chair will be in this weekend. I had to stay away from him personally or I would have been swearing! At least using the computer is not breathtaking.

From Early Trauma thread
Quote
from Dr. Grossman
Quote
There is something crucial missing in your life, and that is an attachment to a loving, caring, empathic person. Without that attachment and the brain wiring that goes with it, all of your shame, pain, humiliation, “unlovability”, etc. will be lived over and over and over again in your life because it is the only wiring that exists. Many would disagree with me about this, but I think producing new attachment “wiring” is more important

When I read this, a lot snapped into place. I have been 'hard-wired' to my family and running on that track for so long, looking for acceptance, whatever and leaving other people behind.

Without realizing it, I switched tracks, after I moved from Ontario to B.C. and the 5 year ago accident brought Karla into my life. She has her problems, as we all do, but she is growing in her yoga and all the 'love and energy' she acquires rubs off on me.

I guess that is why I can feel 'okay' about not keeping in touch with the 'gang that ruined me' in the first place. That is kind of hard, but I know it all began in childhood. I don't have to do and say as they do and say, as I once thought I ought (note the rhyme) Still working on things, but feel so much better.

I was even able to help Karla to not kick her husband out of the house (as she didn't have the whole story). Now she has, and her last email today was "Love love love love love love love"

There is always Good in the Bad

Love
Izzy
"The joy of love lasts such a short time, but the pain of love lasts one's whole life"