Update from.....Izzy

[Izzy_*now*]

I cannot believe this is me.

(First my computer crashed and I lost every email  and document that I recd about the case, but at least it is over. I still could have used some dates for reference.

The pain and aches I developed from head to knees have never stopped. I have been 99% housebound.

The new mouth guard contains BPA (toxic) and weakness sent in with in 2 days. I went to the Dr. and told him I was tired, just so, so tired,  blood test showed low haemoglobin and he set me up for an upper GI. After getting weaker and falling 3 x (arms) and 2 weeks gone by I called an ambulance for myself, spent over night. They kept me over, but with no arrangements made, I was sent home the next day but feeling better-----the I.V. of painkiller spruced  me up---and a promise of a call marked Urgent-----this is because my Dr. thought I was bleeding internally. Am back after that, just yesterday, felt better after the test with another painkiller I.V. and am (so-called) perfectly fine for the upper GI--guess the lower GI next, but cannot believe how weak I am that I could not even fold the laundry.

I have to lie down about 4 times a day, have hired a house-gal, Ellen, who is very nice and she pushes my chair (and me) to library, bank, drug store, etc (for now, not ready to give up PIN #s.). She does that outside stuff, as well as laundry, cleaning etc. shopping.

My haemoglobin was 85 (too low) and my BP dropped from lo-high, to lo-normal and finally went down to low- 83  yesterday.

I was too weak to do anything, so the car battery died again from lack of use.

I only guessed on the poison because of what I had written on the calendar.

I cannot think of anything else---can you!!!!! Was strong as a bull when I started arm exercises in January, but stopped them when it became painful (same as now)….a back pull…. then Karla missed some days,  (incidental I am sure) but then the light bulb---I was in hospital for possible internal bleeding, not for poisoning, was wearing mouth guard, and it wasn,t an idea yet, about poison. I was too lazy for two nights to insert after I got home and became stronger-----didn,t work out though..

Anemia. Leukemia, fibromyalgia , whatever, I don,t know where to start looking and, as usual, my Dr. was wrong.

Izzy

[Hopalong]

Oh Izz. Hon. I am so sorry you are going through this.
I have never heard that the effects of BPA in plastic could be that sudden?
I thought it was more about cancer risk over years of exposure?

But the body's a mysterious thing.

I hope they help you solve this riddle asap, so you can be back in your
best form possible, and enjoying more of life again very soon.

Thank you for the update, hard as it is to hear.

Please let Karla know there are people here who care about you...

love to you,
Hops

[Izzy_*now*]

Oh thank you Hops,

Another guess that could be it!

I,ve come up with the solution, probably---deficiency in Vit B and Vit D--------just today!!!!@!@!

I have sure had a time these past 4+ years and had come from an age when everything we did on the from was healthy.

I never picked up on today,s nutrition, good or bad, and sure messed up with vegetarianism. Karla knows what to do and did it for her, and I just bought the vegetablearianism soup from her, as the sodium content is so high in processed soups. She knew I was eating no-no-s for her but I said I couldn,t go that route forever, but didn,t let me know about any dangers--I don,t blame her though.

I was still meat,  (no raw, but was just coming home from hospital 4 years ago--tasted-like human flesh--even tho I have never tasted it potatoes & vegetables,  but too small amounts ¿ , and lack of outdoor sun---- been inside so long

(Well you know how I cannot seem to trust my GP, with his diagnoses, so I do my own research.  When I have something, or am stumped then I resort to him. I,m curious abut his thinking I was bleeding internally when I had no more symptoms of that....no pain).

Off on another healing spree.

Love Izzy

( I told my new gal Ellen that I have an IQ of 175--and her eyes jumped---but I said that as soon as I got together with someone it dropped to 50).

[lighter]

( I told my new gal Ellen that I have an IQ of 175--and her eyes jumped---but I said that as soon as I got together with someone it dropped to 50).

Wow, 175 IQ, Izz.  That's uber high.

Sorry you're feeling struggling, and your doc hasn't figured it out.  Perhaps a holistic nutritionist could figure out what's going on, and maybe detox you on a celluar level? Not sure, but I'm praying you start feeling better soon.

Lighter

[Izzy_*now*]

Remember, lighter, it-s only Izzy

Ha ha

Whose IQ dropped to 50 points on  this one.......

[Izzy_*now*]

--continuing and heading for the Fourth Specialist

A blood specialist is next and I am pretending that I can bear this pain, while one specialist sends me on to another. To the last one, I suggested leukemia for the next one. I have so many forks in the road., so have a couple of other suggestions for the next specialists-----so this is how they make their money----and I want to go see a psychotherapist to find out if I am being led down the garden path by a Mafia Made for Me.

You know, ¿, I should have kept up my journal, but as I already told you, I lost it with a computer problem that I just figured out, tonight, how to rectify. The aches, pains and any other problems that arose from the accident have now turned into problems that appear to not be accident related, and I expect my next tests to be for a blood disorder. ( I also feel that each specialist knows nothing about what went on with the second last Specialist, on the last referral, and that details are being dropped along the way.)

I am home all the time, at least have my bath lift and have Karla and Ellen. .About  all I do is bit by bit load the garbage, load the dishwasher and turn it on but last week I had to have Ellen empty it. My arms pained too much. I don.t even go downstairs for my mail, as it is painful----I feel like the HOME is near, but yet I am still managing and can even clean the toilet…..a bit like --don,t reach too high: don,t reach too low and NEVER land on the floor.

My furniture never moves, and if I can move an item, I can put it back, so my apartment always looks the same, neat---never untidy. Ellen is very good with all the rest. Therapy is on hold from my weakness but Karla is just the best, for hauling me in her car from place to place.

Somehow I believe that the accident (4 yrs. 4 months ago) is not a (large, anyway) part of what is happening now. Pains to aches to weakness to strength with pain etc. I never know what to expect and now think of pain pill addiction. Without the pain my shoulders are very strong., but I can transfer, very painfully, but from chair to bed etc.

My car is going unused, but I have had Ellen take me to my local places of dealing by pushing me in the chair, and, if necessary, (requiring my signature) then explain that she is doing for me (11 years with same places, they rather know me in this minor 2 bx1 block area.). I see I am putting off a HOME until I have run the gamut of…What is Wrong ¿

A for instance, is awakening to have to go P, but not awake enough pulling the chair toward me and misjudged the brake on the far side. The chair moved and I went to the floor, but I spent 2 hours  (rebuilding the whole bedroom ) to get me back up and into the chair----this was the first time after my shoulders pained and went weak. (I guess I scared everything so much I just went back to bed and waited until morning to P.)

This is all not pleasant but if  can avoid a situation like above and days go smoothly my way, I have it under control. If I goof , it is my fault, but I will figure a way out!

Until I know what the answer is for the pains and weakness, low haemoglobin---even if it is connected to the accident, I signed a waiver to never sue again -- I won,t know if I will be here or in a HOME

I never thought my life would come to this and can only hope for more surprises, but good ones, in the future.

My D, had a heart attack this past Saturday. After a stent into one of the arteries to her heart she was fine, was home Monday, eating lettuce, and walked 1 km on Tuesday---- I just see these things on her Facebook (which I think might be meant for me). This one  followed her acceptance as a candidate for hip replacement.  I trust these are eye-openers for her to lose weight!

I am living, but not jumpy-joy happy, yet still have that dumb belief that what I need-want is just around the corner.. However, I forget that I have been given (g-ven ¿ ..suffered for or am I to say earned-¿))part of what I need---- a good settlement. Now I can pay for what I need, and do so, to the people I deem to be good workers and worthy of being trusted and paid.

Currently, typing is not a problem re muscle use.

As I was wont to do, I always had a book to read to sleepify me. When I took myself to Emergency on June 8, the IV was set up but the guy hit a nerve_bone, the vein bled, and it was painful all night. By morning an obstinate nurse woundn,t help me (I,m afraid that my disability is not passed on to the next shift and they all think I can walk,) so the tubing from IV on my right settled under me when I lifted my butt to transfer to the commode. If I had sat on it I would have pulled the needle--in the wrong direction--- but more bleeding took place anyway, while she just stood there. I am not a screamer, a crier,  and worked it out myself, while receiving from her only a piece of cotton and tape to stop the bleeding.

: I don't know what to do:

As a few days progressed, my thumb and next 2 finger consistently went numb (I have yet to find the position that causes this) but in the meantime the damaged vein leads right to those digits and rather than pain, they go numb to an extent I cannot stand it, which cuts out my reading in bed, which cuts out my desire to go to bed, but I have to as I can sit only about 2 hours, before needing a lie down.

I cannot believe this is my life. It is like my being about age 45 taking care of a 75-80 year old body.

Guess I got carried away, but that is it---for another 6 months.

Love and Luck to All

Izzy
♥ ♥ ♥ ♥ ♥ ♥

[Hopalong]

Oh Izzy.

I wish I could take on some of that pain.
(Though my courage drops to imperceptible levels faster than your IQ drops to 50!)

I don't want your world to shrink!

I hope a pain specialist can help you. A doctor whose entire specialty is pain; nothing else.
And if you do have bad chronic pain, nothing whatsoever wrong with the right dose of opiates.
Addiction isn't a factor --at all-- when it's for pain management, despite all the ignorance.

I heard something really hopeful in your mention of Vitamin D and nutrition...that would
be wonderful, to give yourself more general strength with crazy-intense nutrients.

I've just recently ordered something called Zyflamend, and it sounds as though that
and/or Anatabloc might be helpful for you. Hope you'll look them up.

I have an old Vitamix and when I make a morning drink of the following, it tastes
like a cross between pea soup and a shoe box, but I get it down anyway because
I feel noticeably, actually, genuinely, physically BETTER all day if I do:

2 cups spinach
1 cup fresh parsely
1-2 scoops pea protein powder
half a banana
1 -- 1.5 cups frozen berries (blue, or mixed)
1/2 tsp ginger
1/2 tsp cayenne pepper
1 tsp turmeric
some honey or agave nectar

The Vitamix is so loud I wear earplugs. But after I make the stuff,
I just run it again with a few drops of detergent and half a container
of hot water, so it cleans really easily.

If I could be there I would make you a bunch of these and
freeze them. It's like high-test gas for your body and your body
deserves all the help it can get!

That plus a very gentle hug, and some new music...
http://www.youtube.com/watch?v=AARrVAHnkdY

(I have a weakness for corny talent shows...)

love to you, Izz, heroine--

Hops
PS--I am very sorry you had to hear of your D's sufferings
through FB. But I'm glad you know, and that you accept.
I'm still working on the acceptance part. You've helped me.

[lighter]

Hi Izz:

I'm not surprised about in hospital treatment.... same experiences myself, and with family members. 

So sorry.  Keep asking for help, when you need it, if no one close will help.  I'd ask for a supervisor next time, which didn't occur to me when I was in pain, and the nurses wouldn't help.  Hard to focus when you're struggling and no one will listen, I understand. 

Don't let the people who suck at needles keep working on you, if you can help it.

It's such a relief to know you have your settlement and can make choices about treatment for yourself.  I wish things were getting better more quickly, but you're competent and I trust you'll get on track.

Sorry your dd is struggling with health issues. 

How's Karla doing?  Are you two moving along with T?

(((Izzy)))

Lighter

[Izzy_*now*]

Hi Hops and lighter,

Thank you so much for all your good words, advice, acceptance, whatever, as I am what I Yam.

The fall I mentioned, I landed flat on my left thigh, flat on the carpet, and didn-t notice for a couple a days, *with all this other pain*, that my knee pains were gone. I was bamboozled.....for the first time in 4 years and 4 months none of that excruciating pain. Today makes it 9 days later and still no pain. I haven,t said anything to anyone except Karla and Ellen--- I hate to jinx myself, but 9 days......¿    

Since the shaft of my left femur stands upright, based in my knee, but not hanging on to anything, it could have been a smidgeon out of place so that the distal (knee end) was rubbing on the proximal end of my knee--even a mm., or a cm with the thump ,my leg hit, and maybe even after 3 surgeries some of my *meat* wasn-t replaced exactly either. If I can believe that, and it lasts then there goes ½ my pain, but I can tell you, the arms are needed more.

Yesterday my blood pressure was 67 over 80; today it was 138 over 80. I am so baffled, but am making all the necessary calls, medically, as well as one with Service Canada (your IRS) and  one for a squabble with Visa and Royal Bank. at least these things give me something to do.

Dr. Yarrow and his gal, Linda, are being very, very, nice----------------------------so I guess that means the end"              

xxxxx to all
Izzy

[Hopalong]

Izzy, this is brilliant! AMAZING NEWS!

Would you like me to come over and help bounce you around on your carpet?

I think this is a very clever way to tackle insane, Martian, universally unJUST chronic pain.

I will try to think of some options. Let's see.

Headache? Toss Izzy into fridge, preferably produce drawer. Remove before freezing.
Sore toe? Bounce her on balcony two times, hug, repeat. Admire view.
Indigestion? Put her upside down on closet shelf for 1 hour, shake, replace, repeat.

I swear, it feels as though that is the kind of treatment and relief cycles you have
had to go through for ages. Not funny at all but it makes my brain desperately want
to make you laugh!

LOTS of love to you, ((((((((((((((Izz)))))))))))))))

Hops

[Twoapenny]

Oh Izzy, hope everything is better, better, better soon.  Hugs to you ((((((((((((((((((((((Izzy))))))))))))))))))))))))))))) love Tup

[Izzy_*now*]

Thank you, twoapenny.

Instead of dealing with pain from head to knees, now is  neck, arms and shoulders, which were not part of the accident but have a number of health workers on my case. When we figure out the low blood and fix this, I,ll still be some out of shape but could be close back to pain free.

It was the leg-knee pain that kept me up and down at night--more like half awake, as I could hear me whimpering, but wasn,t awake enough to do anything. All the while with that, my shoulders and arms were quite strong, but they are now talking blood disease.

xx
Izzy

[Izzy_*now*]

Oh Hops,

--and how you did make me laugh! You are just as  silly as having the fall fix a 4+ year pain.

I am inclined to agree with your solutions, since my whole life has been out of whack and I have been thinking about that saying,  *The cure is often the cause*, or vice versa.

I have a number of people to call and make appointments as we continue the investigations.

Love and Luck
Izzy

[lighter]

Izz....

I had this vision of a closet door opening, and the light shining on in on your face for the first time in a long time as I read your post.

It was high time for a good break.

You've had your share of the bad ones; )

Lighter

[Izzy_*now*]

I didn't see that light very long.

Now the answer is that I have bone marrow failure. It is not making any more blood. A transplant can be successful for up to 3 years.

The thickened lining of the uterus is likely cancer, I gather, as 2 Drs. have mentioned that.

I'm sitting up at 2:10, as my shoulders and upper arms pain so bad that I cannot sleep and have trouble anyway, because I need blood and---
I was hit by a car in 2009, and the Occupational Therapist insisted I uses a trapeze and that caused a nerve to be pulled /damaged and I've been careful ever since. No doctor has ever pursued that and now it stabbed me once and I cannot lie on my back, as it sets my fingers to tingling and finally into pain. I can lie only on my right side but that aggravates and other pains I have.

I certainly don't see anything worthwhile for me in the years that follow. Not at all. I have only one answer.

I'll be watching you.

Love
Izzy