And breath

Okay, firstly, sorry for freaking out completely and secondly thank you for your lovely replies, and for being there, and for not minding me freaking out

I have calmed down now; I'm still tearful and veering between angry, hopeful, devastated and dancing round the kitchen but I'm alright and don't have the awful 'lead in the limbs and no control of my thoughts' feeling that I had over the weekend.
It did make me realise that my 'breakdown' thirteen or so years ago was really just about everything being too much rather than being mentally ill. I don't know why that matters to me but it did make me feel better, for some reason?
I also realised that I took that terrible news to people who have a tendency to not be too interested in what I do. Why did I do that? It's like I want to keep hurting myself.
So - practical head on (because that's how I cope - at least some of the time!).
Although it's looking highly likely that he has this condition it's not confirmed yet so still a chance there's been a mix up.
If he does have it there are people who do okay on meds so it might not be a complete disaster.
I am upset that our plans for college are on hold now (I don't feel I want to do anything about that until all these tests have been done as the outcome of these might change the sort of college he goes to as his medical needs might be higher). But it's on hold rather than cancelled so will still happen at some point.
It is looking possible for us to get subsidised housing which will help a lot. I don't know what the housing situation is in the States but over here housing in this part of the country is ridiculously expensive and very difficult to rent when you aren't employed. Local authority housing is much cheaper, better maintained and you don't have the same barriers if you're not working so we might get lucky, which would be good.
We're attending two different hospitals and neither one is being very helpful at the moment. Their letters don't mirror the things they've told me and I seem to be constantly chasing people up, which is very stressful and time consuming. I am going to get some advice on what actually needs to happen next as they seem to be working to two different goals, and then sort out who is doing what and get it all confirmed in writing.
There is a support group; it's very small because the condition is so unusual! But they have a Facebook group so I have spoken to some of them online and will put together a list of questions that I'm trying to get my head around.
I am beyond exhausted - I have just had too much to cope with for too long now. So I'm waiting to hear back from the hospital as to whether my son has any tests over the next few weeks and if he doesn't I'm going to ask that lady if we can borrow her holiday home and go away for a fortnight. I'm miserable in this house and the only way I can take my mind off it is to keep myself constantly busy, which is why I feel so tired all the time. So if we can get away for a bit we will.
I am very, very supportive of my online friends and really do appreciate you being here. But I really, really need some good people in 3D as well. I've been alone for so long, and so very alone for so long. I really want that to change. I have made a plan of things to do this week that involve some group/community activities, and we're going to the cafe I mentioned where the nice lady works. I'm seeing a good 3D friend on Wednesday and hoping to meet up with another one nearer the end of the week. Trying to balance being busy with not wearing myself out.
Thank you very, very much for being there. I'm okay again now. Scared me a bit but I'm okay and will post more news when I have it and when I don't feel so shattered! Thank you xxxx